statistics

  1. M

    Neurologist follow up

    Going in on Friday for a follow up with my neurologist because I have finished physical therapy with no improvement. I was previously diagnosed with cramp fasiculation syndrome but it doesn’t appear to be the case because I have weakness and atrophy noted by my physical therapist... which at the...
  2. C

    Worried and confused

    Firstly, I want you guys to know I appreciate you taking the time to read my story. I am a 37 year old male, father of a two year old and I am very concerned about the probability of having a bulbar ALS diagnosis. Symptoms and dates: 1st week July 2018: buzzing in brain for 10 second...
  3. B

    Thoughts Please?

    Hi there , I am new to this site because I would like some information and thoughts . I am a 23 year old female from Australia (I know from researching statistics the likeliness of me having ALS/MND is very unlikely). My story begins a year and a half ago. I had very strange flu like symptoms...
  4. B

    Article about demographics etc for ALS reversals (Dr. Bedlack)

    I follow Dr. Bedlack on twitter and this popped up yesterday....really interesting. Makes me want to try some of the supplements they mentioned: "The odds of taking curcumin, luteolin, cannabidiol, azathioprine, copper, glutathione, vitamin D, and fish oil were higher for cases than for...
  5. D

    Treatment with cannabis oil, please share your experience

    Dear Sir or Madam. My daddy 57 years old. In November 2017, my loved daddy was diagnosed with amyotrophic lateral sclerosis (ALS disease or motor neuron disease). Bulbar shape in the initial stage. Symptoms: the blurred (smeared) speech, twitching of the muscles of the arms and shoulder girdle...
  6. L

    Quotes of Steven Wright

    The Quotes of Steven Wright: 1 - I'd kill for a Nobel Peace Prize. 2 - Borrow money from pessimists -- they don't expect it back. 3 - Half the people you know are below average. 4 - 99% of lawyers give the rest a bad name. 5 - 82.7% of all statistics are made up on the spot. 6 - A conscience...
  7. BlsdMama

    Can we discuss reflexes?

    I have a working diagnosis of PLS. I’m aware of the statistics. So far two clean EMGs. Had a Neurology appointment at my research hospital, not Mayo. Mayo has dx’d PLS as well but because a glycine receptor antibody was found a trial of IVIG for Stiff Persons was ordered. I’m about seven...
  8. B

    anxiety is destroying my life

    Hello, I've been trying to put off posting here. Like many here, i've read and read and read. Medical sites, aboutbfs, and of course this site. I've gotten to the point where my previously diagnosed anxiety is making me lose sleep and worry uncontrollably throughout the day. I am a 24 year old...
  9. F

    Question regarding twitch pattetns and disease spread(long text)

    Well first of all I would like to tell everyone how much respect I've got for the people fighting the disease and for those that are helping their family members to fight. You are a great and brave people I will try to keep it as short as possible, but I do have to give some background info. So...
  10. A

    Frequency of Fasciculations in ALS

    Hi everyone, I see that along with people that are ALS patients, many worried, looking for information or probabilities visit here. Statistics are very important in evaluating probabilities and can offer information many scientific studies do not particularly present. Therefore I'd like to post...
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