functional rating scale

https://journals.lww.com/neurotodayonline/blog/NeurologyTodayConferenceReportersAANAnnualMeeting/Pages/post.aspx?PostID=65 LOS ANGELES–An experimental drug that regulates inflammation and showed a strong signal in a pilot study in patients with amyotrophic lateral sclerosis (ALS) failed to...

Does anyone know how the functional ratings scale decline or rate of decli e correlates to prognosis? I can seem to find any articles about this. We all know you cant reasonably predict time but it would be helpful to have some parameters.

They are not yet fully enrolled Precision Medicine Program | ALS Therapy Development Institute You have to travel in Boston and they do not pay for the trip or lodging. It is just a few hours visit. Medical history blood draw and skin biopsy. Every month you fill out the functional rating...

Anyone know how this is used for prognosis purposes? Is it based on percent decline? The "number" of the rating? Any thoughts are appreciated, Thanks, Steph

So mom had her first follow up visit since the actual diagnosis..we were told on a scale of 48, she's a 23 and this is in the suspected 8 months she's had it..don't know a ton about ALS but seems lk a pretty scary number to me! Neurologist said it definitely makes him concerned..so can someone...

As an ALS patient this additional delay Seems to ignore many patient's willingness to take prudent risk. I am not searching for an improved acne medication. I urge every patient to help us get this risk/benefit issue revisited by the FDA "A recent review of the double-blind, aggregate data...

This just came in from the MDA - ALS Division: As it is encouraging for those diagnosed in the future - I am praying that the success of these trials speeds up. Trial participants receiving the highest dose of CK-2017357 showed symptom improvement in the first stage of an ongoing phase 2 trial...

ALS Functional Rating Scale Has anyone had a look at this? When my dad was diagnosed we found it and at that time he was about a 30 our of 40 40 being the best and 0 being the worst. Yesterday we did it again and dad's down to a 16.... but he can still walk and talk with difficulty. So I am...

She was over yesterday and we were discussing the vitamins and supplements I was taking. here is an interesting paper she has received. Qureshi M, Shui A, Dibernardo AB, Brown RH Jr, Schoenfeld DA, Cudkowicz ME. Amyotroph Lateral Scler. 2008 Dec;9(6):369-74. Medications and laboratory...

From PharmaLive: Marseille, France, May 5th, 2009 - Trophos SA, a clinical stage pharmaceutical company developing innovative therapeutics for indications with under-served needs in neurology and cardiology, announced today the initiation of the pivotal efficacy study of olesoxime in...