diaphragm

  1. S

    Begging your thoughtful consideration one more time

    I know I am risking being deemed an annoyance, but I'm hoping that all of you who have experienced the tragedy of ALS will forgive me and grant me consideration one more time. The breathing and swallowing difficulties noted in my previous thread continue unabated, but I'm now experiencing...
  2. A

    I have to rule out ALS

    My story starts in Feb 2018. During an xray for shoulder pain they discovered my left diaphragm was elevated, but they didn't bother to tell me. They gave me painkillers for shoulder bursitis. I complained to my PCP in Sep 20108 of constipation. She ordered an abdominal CT scan that showed...
  3. K

    Air Hunger When Laying on Left Side

    My PALS is on Trilogy for about 12 hours at night and another 4 during the day. On two occasions, he has had difficulty breathing on his left side at night while on the machine. The first time it took about 30 minutes of sitting up to recover but last night it was longer. Our RT recommended...
  4. P

    6 months ago, very worried, please help

    Hi, 4-5 months ago I was posting here explaining my symptoms, the situation is more difficult now. When I use my arms I feel tired in the muscles, I have fasciculations, mostly in my two arms, I feel something weird in the diaphragm, in the right and left sides, near to my shoulders. Since...
  5. KarenNWendyn

    Cinderella

    Warning: Adult content Cinderella wants to go to the ball, but her wicked stepmother won't let her. As Cinderella sits crying in the garden, her fairy godmother appears, and promises to provide Cinderella with everything she needs to go to the ball, but only on two conditions. "First, you...
  6. S

    Im really Worried!

    Hello im 2,3 im a newbie to this forum but please hear me out to help get rid of my anxiety since i overthink all the time, So lately I've been have muscle twitches and jerks all over my body mostly when resting do the jerks happen and i feel my muscles spasm or twitch all over. But recently...
  7. P

    My symptoms.

    Hi, i'm a guy, 22 years old from colombia. A month ago I started with a multiple pain in my body, arms, fingers, and upper back and lower back. In the next days appear tingle in my hands and foots, lately appear twitchings in all my body, but more marked in my right hand. These last days I have...
  8. K

    Couple of questions - hopefully not daft!

    Hi - and first off thanks for reading. I may be in the wrong place, but a potted history: a 49 year old man with no medical history, but twitching in a number of locations (mainly calves, foot-arches, upper arms, back and sometimes tongue) for c. 10 months. Had a neuro exam about 3 months...
  9. A

    Breathing, Swallowing issues

    Firstly I want to thank you all in advance for taking the time and effort to read this post I know time and effort are so incredibly valuable to PALS/CALS. I have taken the time to read the sticky’s and understand that I fall into the lowest possible risk group. To make this short I have...
  10. B

    Diaphragm Pacer

    Hello all. I'm currently using non-invasive Trilogy and Cough Assist devices, and I'm scheduled for PEG surgery on August 9. At my PEG consult yeterday, the doctor asked me if I had heard of diaphragm pacing system that's sometimes considered as non-invasive devices become less effective. My...
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