Good afternoon. My name is John Marburger. I am 42, a retired Naval Officer and cancer survivor with some oddities at that go along with it. Apologies in advance for the length of this post and MANY thanks in advance for those of you reading or responding to it, especially those fighting this...
als
autoimmune
back
bfs
brain
clinical
cramping
diagnosis
early
emg
eyes
family
family history
fasciculations
holiday
military
mri
neurologist
pain
progression
stemcell
story
symptoms
twitches
twitching
weakness
hello, just curious if anyone is in a stem cell trial or know someone who is and how the progress is. Is it working? I know recently there were a lot of ALS centers in California that were accepting candidates for the trial and really haven't heard good or bad news about it. I had a friend who...
Here is the link for the California Institute for Regenerative Medicine Facebook live event at 12pm (PT) if anyone is interested.
https://www.facebook.com/CaliforniaInstituteForRegenerativeMedicine/videos/10155956753152144/
I tried the search bar, but either it's my phone or the user, and I'm unable to actually search what I'm looking for. So, my question is on a topic I'm sure was brought up a few years ago.
What are anyone's thoughts on Ted Harada, the person who was apparently cured of ALS in a clinical trial...
Thought you guys might be interested to hear how the Brainstorm conference call went today. Seems like the CEO Chaim Lebovits really wants to make NurOwn available but the logistics are up in the air and nothing is confirmed...
I have PLS. Today is my first day on. I am looking for anyone who has had stem cell therapy and what the results were. I have been doing research on this for about six months and still can't find someone besides a knee injury that has had it done.
This is an illustration of the fallacy of nothing to lose by trying.
We always advise people who ask not to go to stem cell for pay clinics.
These people did not have MND but this story shows how tragic results can be from unproven “ treatments”. There are PALS who have lost various...
My Dad who is 60 an active and daily exercise this entire life was just diagnosed with ALS last week. We are totally devasted and feel completely overwhelmed at the task of trying to slow or better yet stop the progression of this disease. He has 4 children, a wife, 3 young grandchildren that...
I have looked into this study and had a fairly extensive discussion with the study coordinator at the San Francisco site. I am posting information about this study here in case anyone is interested.
Enrollment is still open for this phase 3 study. The study is sponsored by Brainstorm Cell...
age
als
als symptoms
autoimmune
bipap
cell
cure
data
edaravone
feeding
feeding tube
financial
hours
information
night
nurown
progression
riluzole
stemcellstemcells
symptoms
therapy
treatment
trial