pain

  1. M

    Pain management

    My pALS has a lot of pain, mainly in the legs and joints. Has anyone else experienced this or found something that helps? Her main complaint is spasticity and tightness, so they’ve recommended a baclofen pump. She doesn’t want that, but is very uncomfortable. This all started on her right side...
  2. ChesterB

    Rib Cage Pain

    I am in the early stages of breathing problems and I'm having a lot of shortness of breath. On top of that I've had several bad falls in recent months. I am now experiencing quite a lot of rib cage pain near the base of my breast bone that goes around both sides all the way to my spine. Is this...
  3. B

    Tip for neck pain: eviacam + tobii eye gaze

    Hello guys. I always use Tobii dunavox Windows control software to navigate my Windows 10 computer. I recently started to use eviacam with Tobii "warp on mouse move" which is part of Tobii gaming hub software. So if you're having trouble using eviacam alone, because your neck hurts or you...
  4. Tomswife

    Stiff joints

    Pic
  5. M

    Relyvrio and hip pain?

    At first I got dizzy upon taking am Relyvrio. Then got dizzy for both doses. Then got horrible hip pain, am and pm, upon taking it. Took 4 days off, no hip pain. Anyone else?
  6. M

    Neck shoulder pain

    Hi is there anyone out there who takes pain medication for neck and shoulder pain. I’m currently taking some ALS medication and some supplements. I will take a couple Tylenol or Advil when the pain gets rough, but it doesn’t seem to do anything. I can ask my ALS clinic about this, but I thought...
  7. M

    Very painful after RIG

    Got my RIG today, have big pain left side of belly. This is where it hurts when I'm gassyl I'm afraid I made it worse by drinking apple juice at hosp.. Maybe constip is a factor? I'm supposed to wait 12 hrs after procedure before eatingl why is that?
  8. J

    Multiple symptoms for months

    Well for starters I found this website in a state of my panic and have read others threads about similar symptoms in a search for reassurance. I have been very apprehensive about posting here because I know a lot of people are probably just overexcited or scared and have convinced themselves...
  9. S

    Proof that widespread twitching is related to ALS

    I recently came across this article and I'm freaking out now: https://www.ncbi.nlm.nih.gov/pubmed/11464925 Everything I've read on here says that widespread twitching is not indicative of ALS, but this article states otherwise. The worst part is that I had an emg last year that the neuro...
  10. J

    Matress trouble

    My husband shoulders are pretty much just bone now. He is side sleeper and is experiencing a lot of pain from laying that way. Is there anything we can try to protect his shoulder so he can still sleep on his side? We have tried wedges and that is so hard to get him in comfortable position...
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