Hi, bulbar onset, 68 yo, eat and drink via g tube only, walk very little, use walker or wheelchair.
Constipation issue, i use Miralax daily, it was working well, but now i can’t get my muscles to push.
What else could help this? Thank you.
Hi, bulbar onset, 67 yo. Having constipation. Can only eat soft foods, taking Riluzole & Neudextra.
MD said to take Miralax daily, but its not working. Any suggestions? thank you !
Does anyone have trouble with rectal burning made worse when sitting in the power chair? Multiple cushion combinations have been tried and every over the counter remedy has been tried. Prescription level lidocaine and pain relievers including Norco. I'm currently on gabapentin and Lyrica in...
First, let me start by saying that I am here due to symptoms that have been concerning me for almost month. They are new symptoms that have arisen from other symptoms that have been occurring for over three months now, starting at the end of November.
It all started when I had two bowls of...
I have had 2 accidents now and I just dont understand how it's not ALS related. Both now I have been in the bathroom on time but as soon as I see the toilet I cant hold it anymore and it all comes out. Is this normal? Plus my hair is so greasy and my hair on my head and eyelashes are getting...
My husband, Frank, has had increasing neck flexion (chin resting on chest) and tilt to the right. His head is now so far forward that the wheelchair headrest supplies no support. He has a neck brace but even this no longer helps.
I am applying heat and he is taking extra strength Tylenol with...
My story starts in Feb 2018. During an xray for shoulder pain they discovered my left diaphragm was elevated, but they didn't bother to tell me. They gave me painkillers for shoulder bursitis.
I complained to my PCP in Sep 20108 of constipation. She ordered an abdominal CT scan that showed...
abdominal
age
als
back
bulbar
constipation
diagnosis
diaphragm
fear
fvc
insurance
life
mucus
neurologist
pain
paralyzed
saliva
shoulder
story
swallow
swallowing
symptoms
test
tests
wanted
So I am back after a brief hospital stay which caused whatever I have to flair up again.
It all began in 2011
*******-------Feb 4-5th 2019-----------*********
So went back to same neuro with exasperated symptoms after a brief stay in the hospital for severe constipation.
After the hospital...
als
arm
autoimmune
back
bulbar
clinical
constipation
cramping
denervation
emg
exercise
fasciculations
immediately
media
mri
neurologist
scared
shoulder
support
symptoms
tests
tongue
weakness
worried
wrist
Hey everyone.
I've never posted on a forum before such as this one, although I've long been someone that often browses to see what others are going through and that people have to say. But I'm genuinely at my wits end and don't know how to cope any longer, so perhaps just discussing my issue a...