Another CCALS presentation. The speaker is from a program at mgh that helps PALS deal with this
https://us02web.zoom.us/meeting/register/tZEvc--orjoqG93jVOmKhtacalRsb_6GNNeY
I’m at my wits end here. PALS has almost no functional movement aside from head/upper torso and a few fingers. He uses his bipap about 20hrs a day. He can be left alone for an hour or so if he’s reading a book on his computer but he can’t move his hands so he’s stuck there if I’m not home...
The Million Word Gap
Parents who take time to read aloud to their children are doing them a huge favor. Not only is it a memorable bonding activity, but it's also a way to jump-start a child's education and put them on the fast track to literacy. Many parents and caretakers know this...
Hi everyone.
I apologize in advance for the length of this post. I’ve only been a registered user for less than 24 hours but am really impressed with the empathy and knowledge of posters and moderators. What a fantastic resource. I am on this site to not only utilize the nuts and bolts of...
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Hey all,
I am glad I found you. I have been experiencing twitching for 2 1/2 years. I was d's with fnd last year. However, this last February my foot started twitching like crazy. This march the CONSTANT twitching moved to the other side of the same foot. I noticed that my foot has atrophied...
Thank you for taking the time to read what I have going on.
I am a 44 years old mom of two adult children and a 10 year old. Last month, my boss called an ambulance and had me taken to the hospital because I was having problems talking, couldn’t swallow and couldn’t lift my leg and I panicked...
This is my previous article link: https://www.alsforums.com/forum/do-i-have-als-als/43074-my-sister-i-have-same-symptoms-same-time-after-my-father-diagnosed.html
Hello everyone, I returned after being diagnosed after 6 months of symptoms and tests. My neurologist concluded MND disease after a...
Hello! Thank you for allowing me to post this on this forum. I really appreciate any insight!
About a year ago, I was diagnosed with a gluten sensitivity, hiatal hernia, and too much stomach acid. I was placed on a medication and a gluten-free diet. After a few weeks, I noticed some twitching...
My PALS finally received his PWC a couple weeks ago. He should have received it almost a year ago, but miscommunications & ball dropping happened. It is set up with a head array so he can drive it, and a joystick in the back so I can drive it. Unfortunately, his neck has gotten so weak, he is...
On his first clinic day after diagnosis my dad saw a psychologist who asked him to model how he saw himself in a sort of clay or children doth sort of thing. At the time he could still move his hands a bit but not all of his fingers.
He was surprised to see that his work made him think of...