I use NIV, a Nippy 3+ a few hours every day. If someone is nearby I'm fine but when I'm alone I get anxious and panic to the point that I want the mask off but I'm unable to as I can't use my arms.
Has anyone experienced this?
Forgive me for posting yet another time about my drug problems, haha.
What are y'all taking? I was on Cymbalta for a few years, but I think it was aggravating my overheating issues during the summer. I went back to Prozac, which I had no issues with before. But this time it has been a ROUGH few...
I’ve posted before mentioning this symptom. I now overheat really easily. I used to love summer and lying in the sun, but these past two summers have been brutal, so much so that I sometimes wanted to stop existing. If I’m too hot for more than 5 seconds, I start to get a panic reaction. I’ve...
A year ago I started feeling numbness and tingling in my leg and burning sensation in my head
I did a brain MRI which showed corticospinal tract hyperintensities which are biomarkers of Als. Neurologists said no Als and related my symptoms to anxiety but symptoms exacerbated a lot.later I began...
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Hi there,
My family has been burdened with C9 - we’ve lost 6 amazing people in 2 generations, so far, including my mom, Godfather, and Gramma. I’ve struggled with anxiety over this disease for over a decade now. The anxiety presents itself in the form of symptoms and I trick myself into...
Hi All,
I first want to thank you for the opportunity to voice my concerns as well as my apologies for any inconveniences.
To start, my symptoms began a year a ago with some twitching on my stomach. I did a quick google search and Lou Gehrig's Disease came up. At first, I quickly brushed it...
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Hi there everyone,
I'm a little bit nervous to post this, naturally, and do want to say I hope I'm not upsetting anyone in doing so. The people on here seem absolutely amazing and I'd be appreciative of anyone to give me their personal opinion on this. Thank you so much in advance.
Most...
Hello everyone thank you for reading this and I appreciate all the responses.
Back in October i really honed in on my twitches, as in I googled. I’ve always had my twitches but after googling of course my head was down in a spiral.
I’ve seen 3 PCP at my universal hospital and they all tested...
Hello everyone thank you for reading this and I appreciate all the responses.
Back in October i really honed in on my twitches, as in I googled. I’ve always had my twitches but after googling of course my head was down in a spiral.
I’ve seen 3 PCP at my universal hospital and they all tested...
Hi Everyone,
My husband is 35 years old and has lost a cousin, an aunt, 2 uncles, (all to ALS) and currently watches his mom battle the final stages of ALS. His family carries the c9 gene.
Upon visiting with his mom over Christmas (they live out of state) and spending a week surrounded by ALS...
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