Old 03-09-2009, 09:08 AM #1
rebeccalaf rebeccalaf is offline
New Member (Say Hi)
 
Join Date: 2009
City: Logan Township
State: NJ
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 2
rebeccalaf is on a distinguished road
rebeccalaf rebeccalaf is offline
New Member (Say Hi)
Join Date: 2009
City: Logan Township
State: NJ
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 2
rebeccalaf is on a distinguished road
Exclamation Someone please give me some guidance!

It all started 7 weeks ago. I had an eye twitch for a week, then it felt like my hands and feet were asleep. A few days after that, it felt as if someone threw water on my circuits. My whole body went crazy with muscle twiches. I had them on the top of my head, face, tongue, ribs, back, and especially in calves, feet and hands. Coupled with all of that was a muscle, joint, and tendon pain in different parts of my body at different times, always on both sides of my body. Pain was most intense on the bottoms of my feet and palms of hands. Once this twitching and pain started, I started with diahrrea. My GP tested me for vitamin/mineral deficiency and Lyme. All negative.

Now, 7 weeks later, the pain has pretty much stopped, but I continue to have twitches in my hands, feet, calves, torso, back and jaw. Diahrrea continues. Now feeling a little nauseous and having no appetite. My initial exam with the neuro was normal, reflexes fine. I've had no loss of strength. However, I do have a tremor in my left hand, which make that hand seem weaker. I'm constantly thinking I see atrophy in my thumb, but not sure.

One more detail. My nerves had seemed irritated about a week ago, during the height of this. For example, I smoked a cigarette and it seemed to tingle every single nerve in my body and even hurt in two places. Seemed very odd.

I'm sorry this is so long, but I am terrified that I have ALS. I have an EMG scheduled in two weeks and am so afraid of how it will turn out. I'm only 36 and have small children. Any insight would be appreciated.

Becky
rebeccalaf is offline  
Old 03-09-2009, 10:06 AM #2
planningguy's Avatar
planningguy planningguy is offline
Senior Member
 
Join Date: 2008
City: Sheridan
State: Wyoming
Country: US
Interest: Concerned about neurological symptoms
Posts: 556
planningguy is on a distinguished road
planningguy planningguy is offline
Senior Member
planningguy's Avatar
Join Date: 2008
City: Sheridan
State: Wyoming
Country: US
Interest: Concerned about neurological symptoms
Posts: 556
planningguy is on a distinguished road
Default

Not a doctor for sure, but from what I understand pain and sudden onset all over the body would point away from ALS. Also atrophy in ALS comes after significant weakness. You probably never stared at your thumb in much detail before this. Its normal to have slight variations in size from one part of the body to another.

I would carry on to your neuro appt. and see what the EMG reveals. In the mean time try not to worry, as what you describe could be a number of different things. You may be experiencing a reaction to a virus or similiar. There are also a couple of conditions that cause benign cramping and muscle twitching. They are called benign, not because they don't have troubling symptoms (twitching, muscle soreness, pain), but because they won't kill you or cause permanent disability.

Best of luck,

Robert
planningguy is offline  
Old 03-09-2009, 12:00 PM #3
ktmj's Avatar
ktmj ktmj is offline
Member
 
Join Date: 2008
City: Redneck
State: Dixie
Country: US
Interest: BFS and weird muscle stuff going on!
Posts: 421
ktmj is on a distinguished road
ktmj ktmj is offline
Member
ktmj's Avatar
Join Date: 2008
City: Redneck
State: Dixie
Country: US
Interest: BFS and weird muscle stuff going on!
Posts: 421
ktmj is on a distinguished road
Default

Just to reassure you Robert said it very concisely! Many of your symptoms, especially the pain you describe, point AWAY from ALS. Take comfort in that - I know it is a difficult time but there are many benign causes of your symptoms.
ktmj is offline  
Old 03-10-2009, 08:30 AM #4
rebeccalaf rebeccalaf is offline
New Member (Say Hi)
 
Join Date: 2009
City: Logan Township
State: NJ
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 2
rebeccalaf is on a distinguished road
rebeccalaf rebeccalaf is offline
New Member (Say Hi)
Join Date: 2009
City: Logan Township
State: NJ
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 2
rebeccalaf is on a distinguished road
Default

Thank you both for taking the time to reply. I pray you are right. My EMG is in two weeks and I just might spontaneously combust before then.

Becky
rebeccalaf is offline  
Old 03-10-2009, 09:36 AM #5
lydia's Avatar
lydia lydia is offline
Senior Member
 
Join Date: 2007
City: buffalo
State: ny
Country: US
Interest: I hope I am NOT in the process of being diagnosed
Posts: 677
lydia is on a distinguished road
lydia lydia is offline
Senior Member
lydia's Avatar
Join Date: 2007
City: buffalo
State: ny
Country: US
Interest: I hope I am NOT in the process of being diagnosed
Posts: 677
lydia is on a distinguished road
Default

Rebecca,

There once was a time when I studied under Dr. Google...and in that time I specifically remember reading about sudden onset of symptoms (such as yours) and nasty pain in the soles and palms. I thought that location of pain seemed so odd, I remember wondering what it would feel like to have pain in the soles of your feet. I don't remember what it was exactly...but something with the immune system. A response to a virus, something like that.

I agree with the previous posters, it is far too sudden of an appearance to point towards ALS despite the overlap in some of the symptoms. Your EMG will help ease your mind alot, I am sure, if you can make it until then without bursting into flames!

Lydia
lydia is offline  
Old 03-10-2009, 01:43 PM #6
Al's Avatar
♥ Al Al is offline
Moderator
Forum Moderator
 
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 7,967
Al is on a distinguished road
♥ Al Al is offline
Moderator
Forum Moderator

Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 7,967
Al is on a distinguished road
Default

Hey Lydia, maybe it was the bursting into flames or Dr. Google. Darned if I know.

AL.
Al is offline  
Old 03-10-2009, 03:09 PM #7
awieleba's Avatar
awieleba awieleba is offline
Very Helpful Member
 
Join Date: 2008
City: oakland twp
State: michigan
Country: US
Interest: seeing neuromuscular specialist for my issue's
Posts: 1,023
awieleba is on a distinguished road
awieleba awieleba is offline
Very Helpful Member
awieleba's Avatar
Join Date: 2008
City: oakland twp
State: michigan
Country: US
Interest: seeing neuromuscular specialist for my issue's
Posts: 1,023
awieleba is on a distinguished road
Default

Becky~

I started with pain in feet and hands and knee, and had the bowel thing. My twitching just erupted one day everywhere as well. That was over a year ago. They ruled out als for me, but still dont know. Thinking autoimmune. Hang in there. Maybe cleliac sprue? just a guess....

~april
awieleba is offline  
Closed Thread

Tags
als, atrophy, back, children, emg, eye, lyme, muscle, pain, thumb, tongue, tremor, twitch, twitches, twitching


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Need guidance - just diagnosed glimmer People With ALS - "PALS" 49 03-29-2012 09:56 PM
i really need some guidance tifferlynn Current Caregivers (CALS) 16 07-13-2010 02:25 PM
Guidance k600xlt Current Caregivers (CALS) 20 04-03-2010 08:40 PM
Just looking for some guidance lisaohgee General Discussion About ALS/MND 4 03-15-2010 07:37 PM
New and need guidance nzinfinity Do I Have ALS? Is This ALS? 1 02-08-2010 04:11 PM
New and need guidance nzinfinity General Discussion About ALS/MND 0 02-08-2010 12:03 PM
Need some input and guidance please. KEDASO General Discussion About ALS/MND 6 03-25-2009 09:07 PM
Any guidance appreciated mimi0727 Do I Have ALS? Is This ALS? 12 01-01-2009 05:38 PM
New to Group - looking for guidance James m Do I Have ALS? Is This ALS? 1 08-08-2008 04:40 PM
Guidance for Dream 1 Al Current Caregivers (CALS) 0 06-14-2008 02:32 PM


All times are GMT -5. The time now is 07:42 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016