Old 03-05-2009, 05:55 PM #1
piperanne piperanne is offline
New Member (Say Hi)
 
Join Date: 2009
City: Mobile
State: AL
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 7
piperanne is on a distinguished road
piperanne piperanne is offline
New Member (Say Hi)
Join Date: 2009
City: Mobile
State: AL
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 7
piperanne is on a distinguished road
Post keeping sane

I was terrified I had ALS. I still am, but as I posted in another post I'm 33. My reflexes were fine, I assume because he didn't say anything, banbinski fine, again he did'nt say anything. I should have inquired, but I was scared.
I take anti anxiety meds for anxiety ie. lorazepam if I need it. there can bee months I don't. I don't want to be addicted. I tell you the mind is a powerful thing. I've been praying to God (not trying to get religous) and I do believe he is showing me I do have a problem. A problem of reading into terrible things and then getting anxious over it. I need to quit looking things up and dwelling on it. I would of NEVER heard of Lou Gerihits (Sp?) except I was reading about MG because that is what my friend really believes I have, but until i get blood work done, it's not confirmed. She isn't a doctor either. She is just speaking from experience.
The night I learned of ALS was a night of shear terror. I had a terrible panic attack. This has become a bondage for me. The fear I feel reading and thinking omg, I have that symptom, omg, I have this one too........it's horrible. I look at my 12, 9, and 1 year old children and want to break down and cry. My mom is dead, my dad is dead, I've been feeling like I'm going crazy. I quit reading these for a while and became better, not as jittery, but wondering in the back of my mind if it's als. Yesterday while in Walmart my arms and legs began to burn like i was working them out, but they weren't sore afterwords........and I haven't had any problems today and then what did I do..........came back to different ALS sites to read and the repetition began again. I woke up this morning so depressed I didn't get out of bed until noon. I decided this is it. I'm not feeding this anymore. I'm not going to read these boards because of what it does to me emotionally. I thank GOd for the health I have today, tomorrow, and in the future. I am certainly in no way talking bad about those who do come to the board. This seems like an awesome support group and the people are so helpful and willing to answer questions! That is so great! But for me, I have to give my brain a rest. I have to start thinking more positively and maybe my life will be happier and not filled with depression and anxiety about ever illness that will kill me. I admire the people that do have ALS that come on the board and speak to people and give their stories. I think that takes courage and a very strong person...........I admire that so much! So anyway I just wanted to share this with others and if this helps one person then I've done my job. If anyone wants to talk, my email address is casprob at aol dot com.
I wish you guys good health!
Piper!
piperanne is offline  
Old 03-05-2009, 09:24 PM #2
Marjorie R. Wilcox Marjorie R. Wilcox is offline
Senior Member
 
Join Date: 2007
City: Richmondville
State: New York
Country: US
Diagnosed: 10/2007
Posts: 660
Marjorie R. Wilcox is on a distinguished road
Marjorie R. Wilcox Marjorie R. Wilcox is offline
Senior Member
Join Date: 2007
City: Richmondville
State: New York
Country: US
Diagnosed: 10/2007
Posts: 660
Marjorie R. Wilcox is on a distinguished road
Default

Piper,
My goodness! Even with ALS progression, we aren't devastated like this! Why would you choose to spend your time in a tizzy? You are young! Get yourself a friend, a spouse, a hobby, and a job you love. Enjoy your life and stop thinking of how it will end. Worry never adds a day to a life. Attitude is where it's at, not circumstances. Go in PEACE with anticipation of each new day you are given. Count your blessings instead of what you don't have. You are an adult and you CAN do it! Your children need your example. Go go Piper!
Marjorie R. Wilcox is offline  
Old 03-05-2009, 11:54 PM #3
hopingforcure's Avatar
hopingforcure hopingforcure is offline
Very Helpful Member
 
Join Date: 2008
City: Any
State: USA
Country: US
Diagnosed: 09/2007
Posts: 1,420
hopingforcure is on a distinguished road
hopingforcure hopingforcure is offline
Very Helpful Member
hopingforcure's Avatar
Join Date: 2008
City: Any
State: USA
Country: US
Diagnosed: 09/2007
Posts: 1,420
hopingforcure is on a distinguished road
Default

Come on get a grip. You have what it seems like 0 symptoms of ALS.. Your writing seems need I say hysterical....Why would you even think ALS. People come on hear so off the wall, I want to be sympathetic, but sometimes posts like this wear me out.
hopingforcure is offline  
Old 03-06-2009, 12:34 AM #4
brendapals's Avatar
brendapals brendapals is offline
Senior Member
 
Join Date: 2008
City: any
State: any
Country: US
Diagnosed: 06/2008
Interest: I have been diagnosed with ALS.
Posts: 953
brendapals is on a distinguished road
brendapals brendapals is offline
Senior Member
brendapals's Avatar
Join Date: 2008
City: any
State: any
Country: US
Diagnosed: 06/2008
Interest: I have been diagnosed with ALS.
Posts: 953
brendapals is on a distinguished road
Default

Yep, I'm worn out from reading all of that post also. piper-you need to see a dr, psychiatrist, counselor, preacher, SOMEONE- and get a handle on all of that depression and anxiety.
My goodness, ALS doesn't have to be like you describe it! I, for one, am living my life every day as if it were my last-and having a blast with my kids.
For your sake, I hope you don't read any more forums
brendapals is offline  
Old 03-06-2009, 02:36 AM #5
glenn gavanaugh glenn gavanaugh is offline
New Member
 
Join Date: 2009
City: Suburb of Toronto
State: ON
Country: CA
Interest: I am interested in learning about ALS/MND.
Posts: 99
glenn gavanaugh is on a distinguished road
glenn gavanaugh glenn gavanaugh is offline
New Member
Join Date: 2009
City: Suburb of Toronto
State: ON
Country: CA
Interest: I am interested in learning about ALS/MND.
Posts: 99
glenn gavanaugh is on a distinguished road
Default

this anxiety will consume you. it will ruin your life (a life you could be living in the meantime), and cause undue stress in those closest to you. it almost ruined me, so I'm saying this from experience.
honestly, take it easy until you are in a position to understand exactly what is going on with you. try and think optimistically.
and if you can't get around it, then understand that while ALS is an absolutely terrifying disease (especially for those who are young), you are not alone. unfortunately you are not that special. regardless of age, there are thousands and thousands of people all over the world with MND. and millions more with various other progressive diseases.
so until you know, absolutely know without a shred of doubt that you have this disease (or a disease similar to it), I'd honestly quit this forum...or don't come back until you're in a healthier frame of mind. it will only stand to perpetuate and intensify your anxiety (it did to me. as a lurker, and under this account).
So spend your time with your children, other close family and friends. Laugh as much as possible. Have a few beer, or a couple glasses of wine, try to relax. Wait until a clear-cut diagnoses. Then work from there.
Also there is so much hope for a better future for PALS. Things seem to be looking up. Ride with that.

Last edited by glenn gavanaugh : 03-06-2009 at 02:52 AM Reason: too long
glenn gavanaugh is offline  
Old 03-09-2009, 01:51 AM #6
codya13105's Avatar
codya13105 codya13105 is offline
Member
 
Join Date: 2008
City: keystone heights
State: florida
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 118
codya13105 is on a distinguished road
codya13105 codya13105 is offline
Member
codya13105's Avatar
Join Date: 2008
City: keystone heights
State: florida
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 118
codya13105 is on a distinguished road
Default

I have gone through the same exact thing...doing much better now....but for a period of about 3 months...all i could do was look at my little girl and cry...constant panic attacks...always scared of death...was put on xanax, pexeva and effexor.
codya13105 is offline  
Old 03-09-2009, 12:52 PM #7
BethU's Avatar
BethU BethU is offline
Extremely Helpful Member
 
Join Date: 2008
City: Los Angeles
State: California
Country: US
Diagnosed: 05/2008
Interest: I have been diagnosed with ALS.
Posts: 2,644
BethU is on a distinguished road
BethU BethU is offline
Extremely Helpful Member
BethU's Avatar
Join Date: 2008
City: Los Angeles
State: California
Country: US
Diagnosed: 05/2008
Interest: I have been diagnosed with ALS.
Posts: 2,644
BethU is on a distinguished road
Default

Piper ... I hope you're long gone from this forum ... but will add my 2 cents in case you're lurking again.

The anxiety and fear you are experiencing have nothing to do with ALS or any "symptoms" you may think you have. Panic attacks may seem to strike out of the blue, but there are always underlying emotional and psychological issues.

You've been given medication for your anxiety, yet you seem to stop taking it whenever you feel better. Are you taking it now? Can't you see the connection between the anxiety you are being treated for, and the anxiety you are experiencing now? You have glommed onto ALS, as a way to focus your anxiety on something OTHER than whatever it is in your life or in yourself that you don't want to face.

As others here have said ... you need some counseling and you need to take your prescribed medications and get to the bottom of what is really causing you this torment. It's not ALS. You seem to have picked this disease at random.

Is this really how you want to live your life? You're 33, young, in apparent good health, with three great kids, and you're totally miserable. Who gets the kids' breakfast while you're lying in bed till noon worrying about a disease you don't have? GET HELP. Your kids need a mother who is paying attention to them and in control of herself. Worrying about "getting addicted" to your meds? Oh, please ...

P.S. ... wishing people in an ALS support group "good health" is a little wacky in itself. I'll settle for "have a nice day!"

TAKE YOUR MEDS. GET HELP. LOVE YOUR KIDS.
BethU is offline  
Closed Thread

Tags
als, anxiety, back, bed, brain, children, cry, dad, depressed, depression, fear, feeding, friend, health, helpful, life, meds, night, problem, problems, questions, reading, scared, support, symptom, wanted, work


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Keeping a cool seat texastracy People With ALS - "PALS" 12 08-17-2014 01:21 PM
Keeping active GregK Comedy, Humour and Jokes 0 07-29-2014 11:40 AM
Keeping track - part 2 seaside Welcome New Members - Say Hello 25 01-10-2013 04:59 PM
Keeping track of who is from where Geo Welcome New Members - Say Hello 573 02-21-2012 02:42 PM
keeping your mouth shut while sleeping BrianD People With ALS - "PALS" 21 01-04-2012 04:14 PM
keeping track 2 irismarie General Discussion About ALS/MND 1 03-23-2010 07:21 AM
About keeping weight up BrianD General Discussion About ALS/MND 27 01-15-2010 12:59 AM
Keeping track of who is from where Geo General Discussion About PLS 28 08-20-2009 03:20 PM
Keeping progression slow ptich General Discussion About ALS/MND 4 05-26-2008 08:00 PM
Keeping eyes open The Sass General Discussion About ALS/MND 4 01-01-2008 08:21 PM


All times are GMT -5. The time now is 07:37 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016