Old 03-26-2008, 08:53 PM #1
Maryteeth Maryteeth is offline
New Member (Say Hi)
 
Join Date: 2008
City: Cooper City
State: FL
Country: US
Diagnosed: 02/2007
Interest: I am a family member of someone with ALS/MND.
Posts: 3
Maryteeth is on a distinguished road
Maryteeth Maryteeth is offline
New Member (Say Hi)
Join Date: 2008
City: Cooper City
State: FL
Country: US
Diagnosed: 02/2007
Interest: I am a family member of someone with ALS/MND.
Posts: 3
Maryteeth is on a distinguished road
Question Mom has ALS- I am new here

Hello, I am new here and also a bit computer illiterate so this is all new to me. My mom was diagnosed last year, but in reality she was misdiagnosed for about 2 years prior. She has the bulbar onset, so at this time so can not communicate verbally. Lately, she has been getting muscle spasms in her abdomen and torso when she turns or moves suddenly. Does anyone know if this means she is getting worse? Unfortunately, she is very depressed. Any response would help.. thanks Mary
Maryteeth is offline  
Old 03-26-2008, 09:24 PM #2
DonnaJ DonnaJ is offline
New Member
 
Join Date: 2008
City: Culloden
State: West Virginia
Country: US
Diagnosed: 07/2001
Interest: wife whose husband has ALS
Posts: 25
DonnaJ is on a distinguished road
DonnaJ DonnaJ is offline
New Member
Join Date: 2008
City: Culloden
State: West Virginia
Country: US
Diagnosed: 07/2001
Interest: wife whose husband has ALS
Posts: 25
DonnaJ is on a distinguished road
Default

Hi Mary,

I'm so sorry about your Mother. My husband has had ALS for 8 years and for 8 years he has had muscle spasms as well in his abdomen and back. It goes along with the ALS. My husband takes Qaulaquin, baclofen, and zanaflex. If he didn't he would be rolled up into a ball all the time. Every night I rub him down with Icy Hot cream and that seems to help some. Best to you and your Mother.

DonnaJ-WV
DonnaJ is offline  
Old 03-27-2008, 07:19 AM #3
CindyM CindyM is offline
Moderator
Forum Moderator
 
Join Date: 2006
City: Anytown
State: New England
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3,546
CindyM is on a distinguished road
CindyM CindyM is offline
Moderator
Forum Moderator

Join Date: 2006
City: Anytown
State: New England
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3,546
CindyM is on a distinguished road
Default

Hi Mary. Welcome to the forum although I am sorry things are not going well for your mother. You have come to the right spot, though. Lots of caring folks and lots of good tips aroudn here!
CindyM is offline  
Old 03-31-2008, 09:23 PM #4
Maryteeth Maryteeth is offline
New Member (Say Hi)
 
Join Date: 2008
City: Cooper City
State: FL
Country: US
Diagnosed: 02/2007
Interest: I am a family member of someone with ALS/MND.
Posts: 3
Maryteeth is on a distinguished road
Maryteeth Maryteeth is offline
New Member (Say Hi)
Join Date: 2008
City: Cooper City
State: FL
Country: US
Diagnosed: 02/2007
Interest: I am a family member of someone with ALS/MND.
Posts: 3
Maryteeth is on a distinguished road
Smile Thanks for the information

Well, tommorrow I am going with my mom to the Doctor. I will be telling him about her muscle spasms that she has been getting in the abdomen. My dad lives with her, and since she cannot speak he informs me of all her progress. She got an awful cramp in her arm tonight, so I will be discussing this with the doctor. She cannot swallow pills usually so I don't know if they have any medication in liquid form that will help her with the spasms. My dad doesn't speak english well so I always go with my mom to the Doctor visits. It is hard to communicate because she can''t speak and I know she doesn't want to burden me with her ailments. So any information on what to expect is greatly appreciated. Thanks again.
Maryteeth is offline  
Old 03-31-2008, 09:43 PM #5
happy's Avatar
happy happy is offline
Member
 
Join Date: 2008
City: Fair Oaks
State: CA
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 203
happy is on a distinguished road
happy happy is offline
Member
happy's Avatar
Join Date: 2008
City: Fair Oaks
State: CA
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 203
happy is on a distinguished road
Default

Hi Mary,
So sad what you have to endure, I am sorry. I am sure you will be strong for your mom and dad.
As far as the pills if they do not come in liquid form, you might be able to crush them and mix the crushed pill or pills into an applesauce or some other pureed food.
It's a good idea to write all your concerns and or questions down on paper before going to the Doctor. This way when you talk to him/her you can be sure not to leave anything out. In an earlier post to this thread one of the members mentions a couple of drugs that she gives her husband for similar spasms you might want to write them down to ask about them. Hope it all goes well. . God is with you.

Robin
happy is offline  
Closed Thread

Tags
abdomen, als, bulbar, bulbar onset, depressed, diagnosed, muscle, new here, onset, spasms


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


All times are GMT -5. The time now is 07:29 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016