jeff23
Member
- Joined
- Apr 23, 2019
- Messages
- 17
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- Culver City
Hi Everyone,
My husband Jeff (44 white male) was healthy as a horse. Strong man, loves his job and loves me so much I am lucky. Married 5 years.
Long story short he got very sick Jan 4th of this year and it started so simply.
His left leg started cramping up on him and feeling weak. No big deal he thought, he's not one for the doctor so he tried to walk it off.
Second set of symptoms happened over the next day or so as he told me his left arm was feeling weak and he was having a hard time swallowing. He started having twitches all over his body and he didn't know what it was. I didn't believe until I saw all the twitches, he recorded them as well.
I finally got him to see a doctor, our GP.
GP got him into a Neurologist pretty quickly. Neurologist did a clinical exam on him which he failed as his left eye drooped on some kind of up gaze test. He had us come back the very next day for an EMG and he rushed us over to the MRI building to get head and neck MRI's same day. After EMG was performed on him (Jan 18th) he told him it was a completely normal EMG. He doesn't know what the up gaze was failure was. Come back in a few months.
So we came back two months later and my husbands has gotten worse. Since we saw the neurologist last he started having major cramping pains in:
his left ankle
his left calf muscle
both of his forearms (this happened for a month then it stopped)
He had to put lidocaine patches on his forearms, ankle flexor and one right on the back of his calf muscle to relive the pain.
So we just got back from our second appointment a few weeks back where he passed the clinical exam even though his muscle showed clear signs of wasting. His EMG was abnormal in 5 muscles.
He has gotten much worse even since then where both his hands and forearms are weak and his muscles are most definitely shrinking. He tried to put on his watch and his wrists are too small for the hand, he showed the Neurologist but he ignored it all. His left tricep muscles is gone all that's left is loose skin. His leg is weak from the knee down and he walks with a limp now.
It's only been 4 months total.
If you don't mind me asking, is this how ALS progresses?
EMG showed previously tested muscles with
less recruitment. What would do this to him?
Am I going to lose the love of my life after only 5 years of marriage?
He was so healthy in December and now really sick. He lost something like 25-30 lbs in the first month.
Sorry I am scared for him and new here. I need a little help understanding please.
My husband Jeff (44 white male) was healthy as a horse. Strong man, loves his job and loves me so much I am lucky. Married 5 years.
Long story short he got very sick Jan 4th of this year and it started so simply.
His left leg started cramping up on him and feeling weak. No big deal he thought, he's not one for the doctor so he tried to walk it off.
Second set of symptoms happened over the next day or so as he told me his left arm was feeling weak and he was having a hard time swallowing. He started having twitches all over his body and he didn't know what it was. I didn't believe until I saw all the twitches, he recorded them as well.
I finally got him to see a doctor, our GP.
GP got him into a Neurologist pretty quickly. Neurologist did a clinical exam on him which he failed as his left eye drooped on some kind of up gaze test. He had us come back the very next day for an EMG and he rushed us over to the MRI building to get head and neck MRI's same day. After EMG was performed on him (Jan 18th) he told him it was a completely normal EMG. He doesn't know what the up gaze was failure was. Come back in a few months.
So we came back two months later and my husbands has gotten worse. Since we saw the neurologist last he started having major cramping pains in:
his left ankle
his left calf muscle
both of his forearms (this happened for a month then it stopped)
He had to put lidocaine patches on his forearms, ankle flexor and one right on the back of his calf muscle to relive the pain.
So we just got back from our second appointment a few weeks back where he passed the clinical exam even though his muscle showed clear signs of wasting. His EMG was abnormal in 5 muscles.
He has gotten much worse even since then where both his hands and forearms are weak and his muscles are most definitely shrinking. He tried to put on his watch and his wrists are too small for the hand, he showed the Neurologist but he ignored it all. His left tricep muscles is gone all that's left is loose skin. His leg is weak from the knee down and he walks with a limp now.
It's only been 4 months total.
If you don't mind me asking, is this how ALS progresses?
EMG showed previously tested muscles with
less recruitment. What would do this to him?
Am I going to lose the love of my life after only 5 years of marriage?
He was so healthy in December and now really sick. He lost something like 25-30 lbs in the first month.
Sorry I am scared for him and new here. I need a little help understanding please.