Old 03-01-2019, 12:25 AM #1
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Default Growing more concerned.

Iím sorry to be back but, I feel as if things could be progressing. Iíve noticed what I believe to be muscle wasting of the outer muscles on my right foot. I also have a large ďdentĒ in my calf. My whole leg feels unstable and fatigued. I walk on my instep and Iím afraid this is happening because my ankle is not strong enough to support my foot.

Iíve attached a couple of pictures. I know atrophy cannot be diagnosed from pictures, but if you could give me a clue as to if this is alarming. I also have some kind of dimple or wasting above my knee in the vastus medialis muscle.

No clinical weakness yet. Most of my twitches are in the areas where the muscle seems to be smaller, but I do get random ones body wide. Iím just concerned that Iím continuing to see what I believe to be scary signs. I havenít seen a neuro or had an EMG my pcp was very unfazed when I showed him my knee and mentioned twitching. He did a very simple strength test.
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Old 03-01-2019, 12:30 AM #2
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Default Re: Growing more concerned.

Past thread: http://www.alsforums.com/forum/do-i-...g-insight.html
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Old 03-01-2019, 12:52 AM #3
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Default Re: Growing more concerned.

My advice to see a podiatrist stands. S/he can help clarify whether your gait issue represents nerve dysfunction or a mechanical problem, and help with/refer for correction, either way. Unstable gait can lead to falls, not a good thing for anyone.

Of course, you can see a neuro, too, but again, you haven't described any "scary signs" in re neuromuscular disease. Rather than fear the future, I would take care of the present.
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Old 03-01-2019, 01:01 AM #4
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Default Re: Growing more concerned.

Thank you very much for taking the time to reply. I will definitely make an appointment to speak to my doctor and get it figured out. Iíve just been afraid that this could be the early stages of ALS and Iím not ready to hear any bad news. Again, thank you very much for your help.
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Old 03-26-2019, 11:08 PM #5
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Default Re: Growing more concerned.

If this was atrophy due to ALS would I expect to have some kind of failure by now? My whole right leg seems smaller as does my arm and theyíre both just off. There may be actual weakness in my arm. I feel like my right side is just slumped. I have an appointment to see my pcp next week so hoping for some answers. I just feel like Iím noticing so many changes since I went for my knee in January itís hard not to worry.
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Old 03-26-2019, 11:29 PM #6
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Default Re: Growing more concerned.

Pictures generally donít help us much and are not a substitute for a good physical exam from a physician.

If you donít have clinical weakness on an exam from a physician and you donít have muscle function failure, then you donít have ALS.

The most common cause for limb asymmetry would be a biomechanical problem. Physical therapy is often beneficial.

But you havenít described anything that would be of concern for ALS.
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Old 04-05-2019, 05:07 PM #7
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Default Re: Growing more concerned.

Just back to update. I hope that’s okay. Hoping it can stop someone else from worrying a little bit.

My pcp checked my strength and said it was equal on both sides. He did note I had a flat foot on my right side which is my problematic side. He wants me to wear orthotics and exercise and go back in a couple of months.

So, basically, trust the people of this board. They are very knowledgeable and lgelb (sorry I don’t know your name!) hit the nail on the head. Thanks to you and Karen for taking the time to address my concerns.
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Old 04-05-2019, 11:56 PM #8
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Default Re: Growing more concerned.

Thanks for checking in. As you note, seeing what happened can help others in a similar boat.

Best,
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