Old 01-29-2019, 05:50 PM #1
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Default Twitching characteristics

Does Twitching in ALS stop on moving the muscle involved or it happens irrespective of the state muscle is in i.e in motion or in rest/relaxed position ? Also, do you retain the sensation when your muscle twitches during the course of the disease or your body loses the sensation to feel the twitch and you notice it when you see it ?
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Old 01-29-2019, 07:32 PM #2
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Default Re: Twitching characteristics

What did your doctor say?

Twitching means absolutely nothing I'm happy to say
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Old 01-29-2019, 07:55 PM #3
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Default Re: Twitching characteristics

ALS in it's course, leaves you completely paralysed with all 5 senses left intact. It is a disease that only affects nerves that control movement. That is why when in the diagnostic process I was asked about pain or numbness at every visit usually repeatedly. Any sensory issues point away from ALS. Twitching is so common (70%of people twitch) as not on its own not indicative of anything.
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Old 01-29-2019, 07:56 PM #4
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Default Re: Twitching characteristics

Thanks. I am still waiting for the appointment. Head MRI was clear and Spine MRI showed lateral recess stenosis in T3-T4 area and disc bulge in L5-S1. Neurosurgery seems to think that surgery is not needed at this point and referred me to Neurologist and told me to get EMG done. In the mean time I started having twitching in my left thigh and weakness in my left leg which I started feeling when I climbed stairs. It might be perceived weakness and might not be clinical weakness as I am not a doctor but just anxious and tensed. Now my left leg feels stiff all the time as if I ran 10 miles
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Old 01-30-2019, 06:18 AM #5
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Default Re: Twitching characteristics

Hi Karanjot.
Fasics will stop when you request that the muscle is used. While contracting it willingly, the electrical status of the actual command will overtake that of the "electrical activity at rest".
So, be there begnign or not, fasics will stop on contracting and resume as rest.
There's no way to sort the bad ones from the good ones by eye alone.
As a general rule, the more widespread, the better. Also: "fasics without weakness don't have a clinical value alone".
Now there's another electrical phenomenom that is begning and often mistaken with fasics: myokemia. These will look like fasics but thend to have an iterative patern lop-plop-plop" and come in bursts. Myokemia stops when you stretch the muscle that's involved while fasiculations don't.
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Old 01-30-2019, 06:28 PM #6
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Default Re: Twitching characteristics

Thank you. My EMG is in 7 th and hopefully the neurologist doing it will tell me something and I don’t have to wait for several days more to hear when I see my neurologist for an appointment and examination
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Old 02-25-2019, 09:47 AM #7
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Default Re: Twitching characteristics

My EMG results
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Old 02-25-2019, 10:31 AM #8
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Default Re: Twitching characteristics

Your EMG is as clean as it gets. That means no ALS. You’re cleared. Yippee!

And no, it can’t be done too early.
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Old 02-25-2019, 08:54 PM #9
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Default Re: Twitching characteristics

On a positive side my EMG s clear. Thanks for all your support and help. My neurologist gave me a diagnosis of “lumbar degenerative disc and left sided sciatica”. My primary care doctor referred me to physical therapy. My physical therapist noticed a lot of spasticity in my left leg and back on left side. I am now wondering if sciatica and degenerative lumbar disc can cause this much spasticity or something is being missed? All I feel now is lot of spasticity with clumsiness in my left leg, occasional twitching and low grade pain sometimes. It is a lot worse from the point it all started. I did 4 sittings with my physical therapist so far too and no improvement. Should I give it some more time to see how the symptoms manifest or have a talk with my doctor?
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Default Re: Twitching characteristics

Yes. You've been cleared of ALS, so your questions really need to be directed to your medical care providers about what your next steps should be.
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Old 03-22-2019, 02:33 AM #11
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Default Re: Twitching characteristics

After a clear emg, I was tod to go to physical therapy because of the leg weakness and spasticity I was having. Spine MRI showed disc bulge in L5-S1 but no stenosis. Spine people said nothing needs surgical intervention. By the way at this point I am also having cramps in my arm and face and left side predominant. They prescribed medrol dose pack. Second mri of brain showed some T2 hyper intensity spots, but radiology said nothing of clinical significance. Now I am told to see rheumatology and neuro muscular clinic. My n music appointment was 5 months away and suddenly got bumped to end of March. I have no clue to what s going on in my life and I seem to be so lost. Any advice on what to ask doc when I go for neuromuscular?
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Default Re: Twitching characteristics

You do not have ALS. This an ALS Forum.

It's time to let go of ALS and work on your non-ALS issues with doctors
who also are not concerned with you having ALS.

Hope you find relief with your non-ALS issues.

Maybe there is another forum that will help support your emotions while
you go through the diagnostic process.
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Old 03-22-2019, 11:24 AM #13
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Default Re: Twitching characteristics

EMG is clean. You don’t have ALS.

You’re asking us to assist you with your non-ALS issues. That’s not the purpose of this forum.

You’re under the care of physicians. They are the people to whom you should address your questions. Before you go see these specialists, write down your symptoms and questions. Doctors are trained to take it from there.

Keep in mind that neuromuscular specialists evaluate and manage a variety of conditions, not just ALS.
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