Mary Helen Barr
Active member
- Joined
- Mar 6, 2006
- Messages
- 61
I was wondering how low the FVC (forced vital capacity, I think) can go. When my father was diagnosed @ 7 years ago, he was at over 100%. He is now at about 50%. He has difficulty breathing, also, because his head hangs and bends his windpipe. Lying down he is pretty short of breath. I know he doesn't breathe very deeply. When he had his last test, nothing was mentioned about it, just the number. What's next? I take care of him every day, and he often seems OK in that regard, but other times he is uncomfortable. I can't imagine him wearing a mask, because his nose is always stuffy, and he wouldn't be able to talk with it on. I have a C-PAP myself, so I know a little bit about what that feels like. However, I'm sure he would try whatever his ALS doctor suggests. Does anyone have any advice about this?