Old 07-31-2016, 12:40 AM #1
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Default 28 and very confused

Hello!

My name ist lisa and im 28, i have 6 children and number 7 is on the way ( not planned, 5 weeks pregnant)


first of all. my englisch is not really good, i am sorry for that!

it started 5 weeks ago with muscle twitches ( the move all around my body, in my face, in my fingers, legs, arms..its horrible). my muscles feel weak and tired, and i am also very tired the whole time. sometimes my thumb bales hurt on both sides, also my arms and legs. under pressure the twich more. since one week i have a dry cough, espacially at night, my voice sounds a little bit hoarse. maybe this is an bulbar begin? I swallowed today, but i was eating an drinking too fast.

I visited 8 neurologicst, had 2 EMGS and 1 MEP, the all looked great..but i still have this symptoms...can it be to early do see it on the EMG, even if its bulbar?

Please help me, i cry the whole time...

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Old 07-31-2016, 01:02 AM #2
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Default Re: 28 and very confused

Did you have blood work run? Many important levels fluctuate in pregnancy and can cause the symptoms you describe, especially given the 6 children you care for and perhaps your diet was not all it should be to start with. Stress such as an unplanned pregnancy creates might also contribute.

If you had issues with motor neurons, you would not have had "great" EMGs. Please see an internist or perinatal specialist who can help you further. But you are in the wrong place, which is great news.

Best,
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Old 07-31-2016, 01:02 AM #3
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Default Re: 28 and very confused

should i make an emg on my tongue? i dont know what to do
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Old 07-31-2016, 01:04 AM #4
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Default Re: 28 and very confused

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Originally Posted by lgelb View Post
Did you have blood work run? Many important levels fluctuate in pregnancy and can cause the symptoms you describe, especially given the 6 children you care for and perhaps your diet was not all it should be to start with. Stress such as an unplanned pregnancy creates might also contribute.

If you had issues with motor neurons, you would not have had "great" EMGs. Please see an internist or perinatal specialist who can help you further. But you are in the wrong place, which is great news.

Best,
Laurie

Im 5 weeks pregnant, but i have this symptoms much longer.

thank you, for your answer!!
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Old 07-31-2016, 01:08 AM #5
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Default Re: 28 and very confused

My ck is 94!
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Old 07-31-2016, 03:06 AM #6
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Default Re: 28 and very confused

is it typically for als that the switching is very strong in my hands after uplifting one of my children?
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Old 07-31-2016, 04:55 AM #7
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Default Re: 28 and very confused

OK sposkar firstly you and haydenlovett need to read this link.

http://www.alsforums.com/forum/do-i-...-symptoms.html

Don't skim it, read it very carefully, every bit of it. It's our official position (including posting etiquette), and we don't argue against it.

You are not describing ALS at all sposkar, truly. But why would you believe us, who are strangers on the internet, if you won't believe EIGHT neurologists?

Please see your GP and tell him/her of your fears, I'm sure this can be helped. I'm sure your exhaustion can be connected to having 6 children and being pregnant before it will be that you are dying. I raised 4 children and I lived in a state of chronic exhaustion for many years, so I can't imagine 6 or 7.

You have no bulbar symptoms I am also happy to say - my husband died of bulbar onset ALS so I know it very well.
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Old 07-31-2016, 06:08 AM #8
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Default Re: 28 and very confused

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OK sposkar firstly you and haydenlovett need to read this link.

http://www.alsforums.com/forum/do-i-...-symptoms.html

Don't skim it, read it very carefully, every bit of it. It's our official position (including posting etiquette), and we don't argue against it.

You are not describing ALS at all sposkar, truly. But why would you believe us, who are strangers on the internet, if you won't believe EIGHT neurologists?

Please see your GP and tell him/her of your fears, I'm sure this can be helped. I'm sure your exhaustion can be connected to having 6 children and being pregnant before it will be that you are dying. I raised 4 children and I lived in a state of chronic exhaustion for many years, so I can't imagine 6 or 7.

You have no bulbar symptoms I am also happy to say - my husband died of bulbar onset ALS so I know it very well.
i thank you a lot!
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Old 07-31-2016, 02:42 PM #9
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Default Re: 28 and very confused

You asked me privately to explain how a doctor can diagnose bulbar onset as my husband had it.

He began to choke on water. His speech began to slur. He owned a cafe and customers thought he was coming to work drunk. This got worse until he was choking on food too.

His hands began to weaken and he could not open a cardboard packet.

He felt perfectly normal, things simply began to fail.

A speech pathologist and ALS specialist diagnosed him very quickly once we got to see them and he was dead less than a year later.

You are good to go mate.
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Old 07-31-2016, 06:57 PM #10
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Default Re: 28 and very confused

Thank you for your answer. But will a neurologist see bulbar before unclean speaking? Is the EMG clean and do they have hyperreflexes? I cough the whole night since one week.. .
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Old 07-31-2016, 10:53 PM #11
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Default Re: 28 and very confused

My last answer here and I won't answer privately as your posts need to be here in your thread for all to follow.

If you had ALS bulbar or otherwise it would have shown on the EMG.

Coughing at night is too vague.

Please, you are good to go, don't waste your life on this and let us support those with a terminal illness.
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Old 08-15-2016, 05:59 AM #12
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Default Re: 28 and very confused

My Symptoms getting worse, i have Post nasal drip and coughing since 3 Weeks now. Last week i had an EMG of my tongue and another neurologist looked after me, everything was fine, but the twichting is getting worse and my fingers, hands hurts. I am so scared
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Old 08-15-2016, 10:51 AM #13
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Default Re: 28 and very confused

You do not have ALS. Get help for your extreme health anxiety so you can focus on raising your 7 children.
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Old 08-15-2016, 02:11 PM #14
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Default Re: 28 and very confused

I agree with Lixen. Do not think about ALS or bulbar. You do not have ALS or bulbar.
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Old 08-15-2016, 11:32 PM #15
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Default Re: 28 and very confused

If you really are that desperate for an ALS diagnosis, I am sure my mother would GLADLY give you hers. Post nasal drip? Give me a break!
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