Old 03-28-2016, 10:27 AM #1
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Default Allergies or Bulbar ALS?

Good day.

My name is Steve. I'm a 37 year old male from Wisconsin (Go Packers!) A few months ago, I started having body wide twitching. I didn't think to much of it, because I am very active and thought that my muscles was just over reacting to the strenuous activities. But as the months passed, I started to get more worried. So, I decided to see a doctor about it. She, too, didn't think to much about it, and ordered a panel of test. While I awaited my result, I started doing some research, and it lead me to ALS. Naturally I panicked, as this wasn't even on my radar. When the test result came back, she noted that everything looked normal, but suggested I start taking magnesium pills (My mag level was 1.9, the normal range is 1.8-3.0 ML) My only thought is that My mag levels are pretty close to being low. I did see where low mag can cause muscle twitching and spasms. I was relieved to see this. About a week ago, i started to have a change in my voice after a game of softball in cold weather. I would have thought a cold, but I don't have a change in mucus color. My friend, and wife all noticed that my voice sounded deeper. I also have to clear my throat a lot, which isn't weird, but still concerning. I realize its allergy season in all, but I am not aware the allergies can make someone's voice deeper. I haven't notice a lot of congestion, but I can "feel" it in my nostrils (If that eve makes sense.)

So, to avoid more rambling, does the keeping of my voice sound, coupled with the twitching all over my body (Including face, tongue, lips) sound concerning for Bulbar onset? The twitching in my lips feels more like a quiver.

Thank you for your time.
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Old 03-28-2016, 12:22 PM #2
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Default Re: Allergies or Bulbar ALS?

I see no reason to be concerned about ALS.

Dr Google sends every twitcher to us. Sorry, but you're wasting your time thinking about ALS.

If you don't trust your doctor, get a new one.
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Old 03-28-2016, 02:59 PM #3
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Default Re: Allergies or Bulbar ALS?

Mike.

Thank you for your answer. Something else I failed to mention, is it seems my tongue is getting weaker. I am finding it harder to push my cheeks out as far with my tongue. Seems like progressive weakness?
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Old 03-28-2016, 07:30 PM #4
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Default Re: Allergies or Bulbar ALS?

Sacred, If you are truly worried, you need to go back to your doctor. They can see you, do a physical and neuro assessment, etc. We are simply lay people who have or have helped someone with the disease. We are not doctors, sorry
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Old 03-28-2016, 09:20 PM #5
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Default Re: Allergies or Bulbar ALS?

My voice gets deeper when I am trying to summon enough volume to overcome my daily allergies and/or hear myself through stuffed ears, meds notwithstanding. I can feel nasal gunk pretty much 24/7.

I would try the Mg, liquids, lots of fruits, veg and protein, and an OTC nasal steroid (my fave is Nasacort). I don't think you have much to worry about.

Best,
Laurie
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Old 03-29-2016, 10:51 AM #6
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Default Re: Allergies or Bulbar ALS?

Thank you all for taking the time to answer my questions. I just have one more and I'll be out of your hair. It seems I'm starting to have difficulty swallowing. The liquids go down just fine, but I get a feeling that some of it is in my nose. It almost feels like congestion, and almost makes me want to sneeze sometimes. I don't know what ALS difficulty swallowing is, which is why I'm asking. Just seems like its all happening fast. I don't want to be a bother or anytning, just want opinions from the experts.
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Old 03-29-2016, 10:57 AM #7
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Default Re: Allergies or Bulbar ALS?

Go to your doctor
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Old 07-20-2016, 11:24 AM #8
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Default Breathing issues

Hello all..

Couldn't find my original post. I've started to develop breathing problems. I feel the urge to want to take deep breathes, in hopes of getting the "satisfying" feeling. I've also started to have a zapping like feelings in my head. It makes me feel spaced out.. Its almost like the point of fainting. I went to the ER, and my oxygen levels were normal, blood work and xray were good.. Does this sound like ALS breathing problems? I want to point out that I have just quit Duloxetine cold turkey last week..

Thanks.
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Old 07-20-2016, 01:01 PM #9
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Default Re: Breathing issues

No, does not sound like ALS.
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Old 07-20-2016, 02:57 PM #10
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Default Re: Breathing issues

Quitting that med cold turkey is dangerous - go to your doctor.

There is not a single chance you have ALS but you do have serious issues.
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