Old 02-20-2013, 07:30 PM #1
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Default What about TDP-43/FUS testing for diagnosis?

I would like to start off by saying that I admire the courage of all of you and willingness to help other people. Truly inspirational. I have been diagnosed with both fibromyalgia and BFS and have a question that may help other people. Did anyone consider getting gene testing TDP-43/FUS to help with diagnosis. I have identified a reliable lab that will do ALS testing for 7,000, a very, very expensive amount, but can do TDP43 testing for much much much less. I think that insurance might pay. Any thoughts would be greatly appreciated
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Old 02-20-2013, 07:43 PM #2
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Default Re: What about TDP-43/FUS testing for diagnosis?

It seems as if this is still being tested--and moreso for the genetic type of ALS. I wouldn't pay 7k for any test personally.
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Old 02-21-2013, 10:47 AM #3
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Default Re: What about TDP-43/FUS testing for diagnosis?

Also, according to the website of the Perelman School of Medicine at the University of Pennsylvania they have been seeking volunteers for research projects into TDP 43; in those circumstances patients would get testing free, which is all the more reason to keep your wallet firmly closed...
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