Old 02-02-2007, 02:16 PM #1
Rhonda Rhonda is offline
Member
 
Join Date: 2006
City: Mableton
State: GA
Country: US
Interest: I have been diagnosed with ALS.
Posts: 108
Rhonda is on a distinguished road
Rhonda Rhonda is offline
Member
Join Date: 2006
City: Mableton
State: GA
Country: US
Interest: I have been diagnosed with ALS.
Posts: 108
Rhonda is on a distinguished road
Default Driving

When do you stop? I can drive fine, my problem is getting out of the seat belt and turning the keys, due to weakness in hands. Any suggestions to my problems? I'm not ready to throw in the towel on driving. I was a mail carrier for 20 yrs. and losing my driving would be really hard. I'm just in a mood today, I can hardly be understood anymore and last night I went with my daughter to pick out flowers for her wedding and you just sit there and feel completely out of place. I have always been a talker, never met a stranger and now I concern myself with people thinking I'm rude because I can barely speak. It just makes you so angry and I don't know who to be angry at. I just want to scream sometimes. Anyway I hope everyone is having a better day than I am. Take Care Everyone, Rhonda
Rhonda is offline  
Old 02-02-2007, 02:40 PM #2
edna may edna may is offline
New Member
 
Join Date: 2006
City: laguna woods
State: orange county
Country: US
Interest: I have been diagnosed with ALS.
Posts: 66
edna may is on a distinguished road
edna may edna may is offline
New Member
Join Date: 2006
City: laguna woods
State: orange county
Country: US
Interest: I have been diagnosed with ALS.
Posts: 66
edna may is on a distinguished road
Smile Edna May

Dear Rhonda I feel your frustration, I also have lost my voice, even my husband can not understand me, When in a group I sit there like a bump on a log, so much wanting to join in the conversation, I also have just stopped driving I miss the freedom of going places alone, if I had been living alone I would probably still be driving out necessity. that is why this forum is such a god send, being able to communicate with others that understand. I check in a couple of times a day just to feel a part of something. chin up EM
edna may is offline  
Old 02-02-2007, 04:50 PM #3
Rhonda Rhonda is offline
Member
 
Join Date: 2006
City: Mableton
State: GA
Country: US
Interest: I have been diagnosed with ALS.
Posts: 108
Rhonda is on a distinguished road
Rhonda Rhonda is offline
Member
Join Date: 2006
City: Mableton
State: GA
Country: US
Interest: I have been diagnosed with ALS.
Posts: 108
Rhonda is on a distinguished road
Default

Hi Edna May,
Do you have a communication device? I got the lite writer last week on loan from the loan closet at the clinic. It helps alot at home with my husband, when I get over feeling embarrassed I will take it out with friends and family. You don't have to use the voice
if you don't want to. It's good for one on one. They tell me when I get approved for medicare that I can get a laptop and record one of my daughters voice on it. It won't be as bulky as the lite writer. We have to hang in here together. I still talk to my kids and grandbaby on the phone some. I wonder what that baby thinks, but she is a trooper,
she's 3 and she will tell me nana I can open it. She likes to play around some,not realizing she could hurt me, especially my right hand & arm. It's hard to explain to them that they could really hurt you. If your like me I never thought I would be up against
such a challenge. I thought my challenge of my lifetime would be raising 2 boys and a set of twin girls, 3 I have raised and my youngest is 17 and a senior this year.
Take care , Rhonda
Rhonda is offline  
Old 02-02-2007, 05:08 PM #4
bryanmn's Avatar
bryanmn bryanmn is offline
New Member
 
Join Date: 2006
City: Maple Grove
State: MN
Country: US
Interest: I have been diagnosed with ALS.
Posts: 16
bryanmn is on a distinguished road
bryanmn bryanmn is offline
New Member
bryanmn's Avatar
Join Date: 2006
City: Maple Grove
State: MN
Country: US
Interest: I have been diagnosed with ALS.
Posts: 16
bryanmn is on a distinguished road
Default Driving

Rhonda,

I have come to the same issue, I use a power wheel chair and my left arm/hand are weak. I can transfer from the wheel chair to the driver seat and my right foot still works.
My family became concerned and said I should stop driving. I went to Courage Center for driving evaluation, and they recommend I add a spinner knob to the steering wheel to give better control. They also demonstrated that I could drive my wheel chair to behind the steering wheel and my foot could still control the gas and brake pedals. My reaction time on the pedals was like that of a 70 year old ( I am 46) but still legal to drive.

So until my arms become too weak, or foot too slow, they said I can still drive, just need to compensate for slower reaction times.

If you have the money, they even have controls for quadrapeligic using a joystick. Too expensive for me.

I plan to enjoy driving for a little while longer.

Bob
bryanmn is offline  
Old 02-02-2007, 05:51 PM #5
Al's Avatar
♥ Al Al is offline
Moderator
Forum Moderator
 
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 7,967
Al is on a distinguished road
♥ Al Al is offline
Moderator
Forum Moderator

Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 7,967
Al is on a distinguished road
Default

Hi Rhonda. I quit driving last October. I just decided it wasn't worth the chance of hurting someone else if my reactions were a bit slow. I wasn't worried about me doing anything stupid. I was worried about all the other drivers. I'm 57. As for the key , my nephew works in a machine shop and got a piece of aluminum about 3/4 inch thick and shaped it like an oval about 2 1/2 or 3 inches long with a slot in one end for the key and drilled a hole in it and put a screw in to hold the key in place. Worked great for me for about the last year I drove. You could probably get somebody to make it from wood if you wanted. You can also poke the belt button with it.
AL.
Al is offline  
Old 02-02-2007, 10:31 PM #6
John1's Avatar
John1 John1 is offline
Very Helpful Member
 
Join Date: 2006
City: Newfoundland
State: NL
Country: CA
Diagnosed: 10/2000
Interest: ALS dx in 2000; changed to UMN-dominant in 2012
Posts: 1,028
John1 is on a distinguished road
John1 John1 is offline
Very Helpful Member
John1's Avatar
Join Date: 2006
City: Newfoundland
State: NL
Country: CA
Diagnosed: 10/2000
Interest: ALS dx in 2000; changed to UMN-dominant in 2012
Posts: 1,028
John1 is on a distinguished road
Default Driving

Hi Rhonda,

I think the individual is the best judge of when to quit. I've used a scooter for the past 3 years and a wheelchair rampvan. My legs are too weak to walk but I can operate the gas ok. My arms are weakening but I have no concern about strength yet for steering. I recommend a spinner knob and hand controls for braking. Both will extend your driving and safety. I just arrived in Arizona having driven 4000+ miles to get here. I never had a moment when I felt my ALS jeopardized my driving ability.

John
John1 is offline  
Old 02-02-2007, 10:56 PM #7
edna may edna may is offline
New Member
 
Join Date: 2006
City: laguna woods
State: orange county
Country: US
Interest: I have been diagnosed with ALS.
Posts: 66
edna may is on a distinguished road
edna may edna may is offline
New Member
Join Date: 2006
City: laguna woods
State: orange county
Country: US
Interest: I have been diagnosed with ALS.
Posts: 66
edna may is on a distinguished road
Default \Edna May

Hi Rhonda, Yes I have a lite writer, I got it last month & use it quite bit with my Husband, it is usually one or two words he can't get ( in my defense he has a hearing problem) but yes I like it. that would be nice if you can have your daughters voice. I used to have two friends that I could talk to on the phone but they can no longer understand me. it gets lonely some times, when you have so much to say & can't get it out. You are lucky to have a grand child, My two Kids are married but never had children.Nice talking to you. Keep smiling. EM
edna may is offline  
Old 02-03-2007, 07:17 PM #8
CindyM CindyM is offline
Moderator
Forum Moderator
 
Join Date: 2006
City: Anytown
State: New England
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3,546
CindyM is on a distinguished road
CindyM CindyM is offline
Moderator
Forum Moderator

Join Date: 2006
City: Anytown
State: New England
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3,546
CindyM is on a distinguished road
Default

Hi Rhonda. I go back and forth on the driving issue. I still have strength to operate the vehicle but driving wears me out and leaves me feeling awful, physically. My arms shake from weakness and the effort to hold myself upright is a struggle. I don't know how much longer I'll keep it up but probably, like Al, I'll give up when it looks like I am at too much a risk for others. Good luck with your decision...Cindy
CindyM is offline  
Old 02-06-2007, 12:05 PM #9
rcharlton's Avatar
rcharlton rcharlton is offline
Senior Member
Forum Moderator
 
Join Date: 2005
City: Toronto
State: Ontario
Country: CA
Diagnosed: 11/2005
Interest: I have been diagnosed with ALS.
Posts: 610
rcharlton is on a distinguished road
rcharlton rcharlton is offline
Senior Member
Forum Moderator

rcharlton's Avatar
Join Date: 2005
City: Toronto
State: Ontario
Country: CA
Diagnosed: 11/2005
Interest: I have been diagnosed with ALS.
Posts: 610
rcharlton is on a distinguished road
Default

Hi Rhonda,

If your ALS has progressed to such an extent that it affects your ability to drive - and If you want to be safe and legal - you should contact your DMV and advise them of your situation. They will give you a driving test to make sure you can still drive safely. It will also indicate to your insurers that you are still capable of driving.

The risk here is that they might take away your license if you fail the test.

The bigger risk - if you don't do it - is that if you get into an accident - and your insurer learns of your condition - they could deny you coverage. Most policies require the insured to advise the insurer of change of circumstances that might affect the insured's ability to drive - this would include ALS.

Tough call - but if ALS is comprimising your ability to drive - could your family withstand a multi million dollar law suit stemming from a car accident in which you were involved and where your insurer denies you coverage?
rcharlton is offline  
Old 02-06-2007, 12:47 PM #10
Mike27's Avatar
Mike27 Mike27 is offline
Member
 
Join Date: 2005
City: Edmonton
State: Alberta
Country: CA
Diagnosed: 10/1993
Interest: It's only a part of my life, not my whole being!
Posts: 280
Mike27 is an unknown quantity at this point
Mike27 Mike27 is offline
Member
Mike27's Avatar
Join Date: 2005
City: Edmonton
State: Alberta
Country: CA
Diagnosed: 10/1993
Interest: It's only a part of my life, not my whole being!
Posts: 280
Mike27 is an unknown quantity at this point
Default

Hi Rhonda

rcharlton is exactly right! I had to let my DMV know that I had a neurological disease so I had to be tested on a yearly basis.

I drove (with ALS) for about 6 or 7 years. I was quite arrogant about my right to drive. (I'm not saying anyone here is arrogant, this is my situation) I felt that it would be a cold day in hell before someone tells me I can't drive!

Then one day, I was driving my son somewhere and approached a stop sign. I knew to stop but my foot wouldn't move to the brake. I managed to stop, but with the nose of my van in the intersection. That incident, whether it was a lack of control or lack of reaction, was when I decided to stop driving. I could have injured my son or someone else because I was too stubborn to realize that my limitations had changed.
Anyway, I slowly drove home and told my wife that that was it!

I remember that like it was yesterday!(it was about 6 years ago)
Scared me to no end.
Mike27 is offline  
Closed Thread

Tags
angry, driving, hope, night, problem, problems, weakness


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
driving MaxEidswick People With ALS - "PALS" 28 07-23-2015 03:50 AM
Driving? JLRNL General Discussion About ALS/MND 18 07-16-2012 08:00 AM
ALS and Driving happygardener General Discussion About ALS/MND 30 03-08-2012 10:20 AM
driving suzkl ALS and FTD 11 12-23-2011 11:35 PM
Drunk Driving rcharlton Rants & Raves 7 06-04-2011 06:59 PM
Driving Rehab rose People With ALS - "PALS" 15 05-02-2011 09:08 PM
Driving ? T-rex General Discussion About PLS 3 09-26-2010 10:17 PM
Driving & ALS Pidge General Discussion About ALS/MND 51 04-22-2010 10:21 PM
driving me mad olly General Discussion About ALS/MND 3 01-17-2008 07:29 PM
Driving flora Do I Have ALS? Is This ALS? 10 11-12-2007 11:10 AM


All times are GMT -5. The time now is 06:57 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016