I vote for another opinion, as well. If you haven't been checked out by a neurologist yet, you should if ALS is being brought into the picture!
How many things have been ruled out in your case? The conclusion of ALS is arrived at by ruling out ALL else. In your opinion, has everything else been ruled out yet?
Zaphoon
Thank you all. There is more to this. It is thought my Mom the last few months of her llfe had ALS. No emg. We had taken her to a neuro because her voice seemed different and she said her eyes bothered her. We were thinking stroke.The Doctor saw these minute fasics at the inside of her arms. She died because she took a fall and had an event in surgery to replace her hip. I don't have these visible small fasics anywhere but do get spasms.
My moms youngest sister had ALS they thought about 30 years ago. None of this helps me.
I've had involuntary movements since I can remember and parathesias as well as restless leg. EMG never diagnosed anything until Nov.-Dec. 2007. He said ALS too, a neuro. but would not listen to me when I said about numbness and zapping shocks ect. MRI is the only other thing I've had for testing. When I was in S. Carolina and was having strange problems they gave me what they call a QST because the emg then only showed one muscle, tibialis anterior was not right. The QST said "sensory neuropathy, axonal."
They went through three machines because it was so bad. My feet and ankles had no reflexes then either. So over many years.
The Phyciatrist is at the MDA way up north. The Dr. that I most liked was the geneticist which said you don't have ALS and nothing relative. He left for Pheonix. This Physio. is trained and certified in electrical studies but so help me sensory does not always show up on those tests, especially small fiber. First neuro said I don't care what you say you have something else as well, it's ALS. Real kind fellow.
I have some weakness in legs and ankles and base of back. My hands can trigger finger but always return to normal. My voice gets scratchy if I talk to much or to long but I eat and drink fine. No doubt about the reinerveation ect. mostly in legs.
Oh yes one other neuro. said no quite recently. Said I was to strong and it's been to long and she see's no fasics. So need advice. I thank you all.
Kewanee