Mills Syndrome

Hi everyone..I am new to this forum, but I have been searching for some type of support group. I was diagnosed with Mills Syndrome in June 2014. It was a long and tiring search (7 yrs), to come to my diagnosis. I saw 4 different drs., before seeing a ALS Specialist, who knew immediately what I had. This disease has effect my right side (I was rt handed) and I have adapted to using my left side. I would love to talk to anyone with this disease and to learn more about it (not a lot of info on the internet). thank you.

Cathyann,

From what I've read, Mills syndrome is a rare type of MND which affects only one side of the body. There is at least one good publication about it on the internet that I have read. This is probably a good place to find support since it's similar to PLS in many ways.

The short story is "PLS on one side, without being PLS." So, Cathyann, this is as good a place as any to hang out, and welcome.

We also encourage those with PLS/upper motor neuron disease to read the ALS threads here, as there is more content and probably some tips 'n' tricks that are applicable to you.

Best,
Laurie

Cathyann, if Mills Syndrome is truly a variant of PLS, as believed,, then you have found a great support group right here. However, to minimize confusion and to avoid explaining Mills Syndrome with every post, may I recommend just posting as a "regular PLS'er" if you catch my drift... Welcome! TB =)

Hi there Cathy
Welcome to you.
This Mills thing is apparently what I have.
There is hardly anything out there that makes sense regarding Mills, I agree. I'm sure you will find a lot of help here.
I too have right sided hemiplegia and have learnt to be a 'leftie'!

Thank you everyone, for the support.

CathyAnn, I somewhat regretfully say, "Welcome aboard." In any MND it's hard to find gratefulness but with Hemiparesis gratefulness can be that it just affects one side. Let's hope that it does not migrate to your other side. Throughout the Forum is a lot of good information, very knowledgeable people and support. Again, "Welcome aboard." And.. please share any information you may discover concerning Hemiparesis (Mills Syndrome).