Ikuu
New member
- Joined
- Jun 23, 2015
- Messages
- 2
- Reason
- Loved one DX
- Diagnosis
- 11/2014
- Country
- CA
- State
- Ontario
- City
- Toronto
Hi There,
My father (57) was diagnosed with FTD back in October 2014.
We are only now finding out what he might also have ALS and they are doing tests although the neurologiist seems to be convinced he has both.
I know this sounds like a weird question but with the combination of FTD/MND - how long does he have to live? It says 3-5 years from diagnosis.
As of right now he is fairly healthy, and has some issues swallowing and his muscles twitch. He has almost lost all ability to speak due to his FTD (non fluent).
My wedding is next year in August and I want to make sure he is going to be there and able to walk me down the aisle but I don't know how long he has until he starts to seriously degenerate. As of right now, if you saw him and didn't hear him struggling to speak - you would NOT know he is sick.
Should I think about moving my wedding up so my dad can be there and be as healthy as possible? What are the chances that 14 months from now he will be in a very bad state - does the disease progress THAT fast if he is OK right now and mainly struggles with speech? HELP! I don't know what to do and want to make the right decision to ensure he is with me on my wedding day as I know he would like that.
My father (57) was diagnosed with FTD back in October 2014.
We are only now finding out what he might also have ALS and they are doing tests although the neurologiist seems to be convinced he has both.
I know this sounds like a weird question but with the combination of FTD/MND - how long does he have to live? It says 3-5 years from diagnosis.
As of right now he is fairly healthy, and has some issues swallowing and his muscles twitch. He has almost lost all ability to speak due to his FTD (non fluent).
My wedding is next year in August and I want to make sure he is going to be there and able to walk me down the aisle but I don't know how long he has until he starts to seriously degenerate. As of right now, if you saw him and didn't hear him struggling to speak - you would NOT know he is sick.
Should I think about moving my wedding up so my dad can be there and be as healthy as possible? What are the chances that 14 months from now he will be in a very bad state - does the disease progress THAT fast if he is OK right now and mainly struggles with speech? HELP! I don't know what to do and want to make the right decision to ensure he is with me on my wedding day as I know he would like that.