Beata Krupa
New member
- Joined
- Aug 11, 2014
- Messages
- 4
- Reason
- Friend was DX
- Country
- US
- State
- TX
- City
- Houston
Hello everyone! I am looking for a recommendation of a good neurological/ALS diagnostic center(s) anywhere in Europe. A close friend who lives in Poland has been struggling with getting his similar to ALS symptoms diagnosed. Some doctors in Poland say it is ALS. But,other doctors say it is something else, but they don’t know what. He had many tests, including all the ALS diagnostic tests, done more than once. He was also tested for many other neurological problems, etc. Still, the doctors, who think that it is not ALS, don’t have an alternative diagnosis. We would like to find a really good center in Europe to ask for a second (or rather third) opinion.
We tried to ask John Hopkins, Mayo Clinic and several other centers in the US to look at his many (really extensive and professionally done) tests from Poland, and tell us if they think they can see or do anything else here in US. Unfortunately, they will not give a second, or any, opinion in a case of an international patient without seeing this patient in person. Traveling to US will of course be very expensive. Going to Europe is much more feasible. I know it it a strange question, but maybe someone knows what are really good ALS/neurology centers in Europe? I will very much appreciate any information anyone can give me. Thank you very much.
We tried to ask John Hopkins, Mayo Clinic and several other centers in the US to look at his many (really extensive and professionally done) tests from Poland, and tell us if they think they can see or do anything else here in US. Unfortunately, they will not give a second, or any, opinion in a case of an international patient without seeing this patient in person. Traveling to US will of course be very expensive. Going to Europe is much more feasible. I know it it a strange question, but maybe someone knows what are really good ALS/neurology centers in Europe? I will very much appreciate any information anyone can give me. Thank you very much.