AnnaMaria
New member
- Joined
- Jun 11, 2014
- Messages
- 2
- Reason
- Other
- Country
- RO
- State
- brasov
- City
- Brasov
Hi! I'm sorry to bother you, i realise you are experiencing far worst problems than mine but i have all this questions and no answers.
My fasciculations started almost 5 months ago after a couple of very stressful months; they started in my legs then they spread to my arms in a few weeks and in a month or so my eyes started twiching. Now i'm having them all over my body, especially in my foot, palms, lips and shoulders.
For 3 months i just ignorred them, i thought it was hypocalcemia or something but a month ago after i chought a terrible flu this fasciculations started spreading from one day to another to my face, back and chest. After that flu i also started feeling weekness in my calfs.
I decided at that point to see a neurologist. So after some blood tests where they excluded hypocalcemia or something related to vitamins or thyroid problems i had an emg. The emg was clear but with some decreased potentials and a bit of abnormal activity in one of the muscles which was not continous. The doctor said it can't be als because i'm too young, and he cannot see any weekness and because my general reflexes are decreased and in als they are increased.
I left the neuro really happy thinking it is for sure bfs and i even started some kind of treatment with an antiepileptic that apparently works for fasciculations.
Now, after a month and a half, fasciculations have gotten worse, the treatment doesn't work, i feel weakness in my calfs like i'm always walking on ice and my left palm muscles are always almost always twiching. I also have this weird thing, i feel permanent tighness in some muscles of my calfs.
I know that for all of you that had been diagnosed this sounds like anxiety but i'm still going to adress you some questions, if you find the time to answer it would help alot. I forgot to mention i'm only 23.
- So, are there among you diagnosed patiens that had a clear emg at the begining, months after the fasciculations started? is that possible?
- did anyone experienced this thightness in some of the muscles of the calfs ?
- how relevand is for the diagnosis the blood test for the anti-ganglioside antibodies? because nobody told me to do this
- and the most important, do you know if there is an asl diagnosis and treatment center in europe?
sorry for this long post and for my english and thank you in advance
My fasciculations started almost 5 months ago after a couple of very stressful months; they started in my legs then they spread to my arms in a few weeks and in a month or so my eyes started twiching. Now i'm having them all over my body, especially in my foot, palms, lips and shoulders.
For 3 months i just ignorred them, i thought it was hypocalcemia or something but a month ago after i chought a terrible flu this fasciculations started spreading from one day to another to my face, back and chest. After that flu i also started feeling weekness in my calfs.
I decided at that point to see a neurologist. So after some blood tests where they excluded hypocalcemia or something related to vitamins or thyroid problems i had an emg. The emg was clear but with some decreased potentials and a bit of abnormal activity in one of the muscles which was not continous. The doctor said it can't be als because i'm too young, and he cannot see any weekness and because my general reflexes are decreased and in als they are increased.
I left the neuro really happy thinking it is for sure bfs and i even started some kind of treatment with an antiepileptic that apparently works for fasciculations.
Now, after a month and a half, fasciculations have gotten worse, the treatment doesn't work, i feel weakness in my calfs like i'm always walking on ice and my left palm muscles are always almost always twiching. I also have this weird thing, i feel permanent tighness in some muscles of my calfs.
I know that for all of you that had been diagnosed this sounds like anxiety but i'm still going to adress you some questions, if you find the time to answer it would help alot. I forgot to mention i'm only 23.
- So, are there among you diagnosed patiens that had a clear emg at the begining, months after the fasciculations started? is that possible?
- did anyone experienced this thightness in some of the muscles of the calfs ?
- how relevand is for the diagnosis the blood test for the anti-ganglioside antibodies? because nobody told me to do this
- and the most important, do you know if there is an asl diagnosis and treatment center in europe?
sorry for this long post and for my english and thank you in advance