affected
Guru status reached
- Joined
- Apr 26, 2013
- Messages
- 16,096
- Reason
- Lost a loved one
- Diagnosis
- 05/2013
- Country
- OZ
- State
- AU
- City
- lala land
Now this is a bit of a hard one to tell for sure with bulbar issues involved.
My PALS will try to say something which is hard to understand. I try saying back what I think he said and he lets me know if I'm right (usually not). We use a few tactics to help us both.
Now what is changing lately is that for example I may say back - you would like a coffee? He will say no, then try saying it again, I will say back you would like the toilet, no, and so I try about 4 or 5 things, all no. Finally I say again, you would like a coffee? YES
It's only been the past week or so, but it seems that several times a day now it is happening. I laugh and say, but that's the first thing I asked if you were saying, and he laughs.
Inside I'm getting a little concerned that the FTD is moving past just the behavioural variant. Anyone else dealing with FTD notice anything like this?
bewildered
My PALS will try to say something which is hard to understand. I try saying back what I think he said and he lets me know if I'm right (usually not). We use a few tactics to help us both.
Now what is changing lately is that for example I may say back - you would like a coffee? He will say no, then try saying it again, I will say back you would like the toilet, no, and so I try about 4 or 5 things, all no. Finally I say again, you would like a coffee? YES
It's only been the past week or so, but it seems that several times a day now it is happening. I laugh and say, but that's the first thing I asked if you were saying, and he laughs.
Inside I'm getting a little concerned that the FTD is moving past just the behavioural variant. Anyone else dealing with FTD notice anything like this?
bewildered