Symptoms progressing

Hi everyone my symptoms started just over a year ago now and I've been to two neurologists but they are still baffled as to what I have.my symptoms began as feeling really really fatigued which was unusual and nausea,I went to doctor and he said it was ok I continued to feel worse then I noticed my face was beginning to droop both sides which progressively got worse along with atrophy in temples,eyelid droop along with a lot of twitching when muscles are in use.i get twitching all over and people notice my facial twitching a lot,I have also lost muscle tone in arms and legs constantly pins and needles in hands and feet.they have tested me for ms,had lyme test,thyroid,lumbar punch,MRI of head and emg(which went for a short 10 minutes,also ck levels checked and checked for mg also all tests normal so they are baffled to figure out what this is and are watching progression and will re do tests later.have any of you had normal results to begin with and been diagnosed with als later?and do my symptoms sound like als? Your replies would be great as I am a mother with four children and I'm 33 I'm getting sicker all the time and the muscle loss is scary my face is a lot different then 12 months ago I also suffer from muscle jerks especially at rest and my tremors are bad

This is the 3rd thread you have started and it says the same thing. Please it is hard to keep up when you open multiple threads, especially for those who have trouble typing because of disabled hands.

I am not a dr but from I read it doesn't sound like als. You have had most of the tests and they are normal. It could still be anything at this point. It is normal to wait 3-6 months to see if there is progression and what type progression. Als usually starts distally in a hand or foot. Bulbar als starts with slurred speech and choking on liquids. It does not present with body wide twitching.

Trust in the drs you are seeing. They are educated, trained and experienced. You need to have patience, some people here have been waiting for months, some years and some are still waiting.

All this fretting and anxiety is going to make things worse and you are accomplishing nothing with it. You need to find some way to relax, and enjoy family and friends. The time you are spending being frantic is time wasted that you will never get back and will not change the outcome be it good or bad. I am speaking from experience. It took 5 years to get my answers and I am 6 1/2 years into this. Everyone here has been in your shoes and understand the fear but you have to get it under control. I wish you peace.

I think that "eyelid drop" typically would indicate "Myasthenia gravis". You can also try therapy related to "lyme". Some people think that it is possible to be sick and have negative test results at the same time. It may sound weird but maybe it is worth trying...

Mg results come back negative but I was thinking lyme should b done again

"Mg results come back negative but I was thinking lyme should b done again"

Why exactly do you think that?