rhondab
New member
- Joined
- Oct 25, 2011
- Messages
- 4
- Reason
- Learn about ALS
- Country
- US
- State
- TX
- City
- Arlington
I've posted once before, several months ago, but things are slowly getting worse. In July of last year, I noticed in 2 spots that my muscles were sunken in. Soon after, I began twitching, and by August/September I noticed some mild weakness in my arm, making cooking and holding a phone to my ear a little difficult. My right leg aches, but I don't know if I would call it cramping. I saw a neurologist around that time, who confirmed the atrophy in my leg and arm. He performed an EMG and said that there was chronic denervation/reinnervation in my right forearm, but did not believe this was an indicator of ALS. He recommended that I come back in a year, only to ease my fears.
Over the months, I've noticed even more changes. The atrophy in my leg has worsened in that one spot, looking like a large crater. When I lay in bed at night, it feels harder to move my leg around. I also ache in my right leg, and now my left leg is starting to ache the same way my right leg started months ago. To make things even worse, my left ankle has become so sore within the past 2 weeks, no injury, and my right shoulder feels like I've injured it, but haven't. Also, my shoulder is kind of stiff, kind of painful when I move it in different directions, like when dressing. In addition to all of this, the muscle twitches that I have, have moved to parts of my body that I've never had them in, and at times my muscles feel really tight.
I have been told that no active denervation means no als, but with all of these changes in my body, I'm afraid something has been missed. Is this "all in my head" or does it warrant another doctor visit? Thank you for your time.
Rhonda
Over the months, I've noticed even more changes. The atrophy in my leg has worsened in that one spot, looking like a large crater. When I lay in bed at night, it feels harder to move my leg around. I also ache in my right leg, and now my left leg is starting to ache the same way my right leg started months ago. To make things even worse, my left ankle has become so sore within the past 2 weeks, no injury, and my right shoulder feels like I've injured it, but haven't. Also, my shoulder is kind of stiff, kind of painful when I move it in different directions, like when dressing. In addition to all of this, the muscle twitches that I have, have moved to parts of my body that I've never had them in, and at times my muscles feel really tight.
I have been told that no active denervation means no als, but with all of these changes in my body, I'm afraid something has been missed. Is this "all in my head" or does it warrant another doctor visit? Thank you for your time.
Rhonda