MichelleDZ
New member
- Joined
- Oct 27, 2011
- Messages
- 3
- Reason
- Loved one DX
- Country
- US
- State
- CA
- City
- Los Angeles
In my family tree on my mother's side, you can trace ALS better than eye color. We are clearly in the 10% that is FALS. AND it affects the women. AND its incredibly rapid (diagnosis to death tends to be a year or less in my family... I think 2 years is the max).
I'm not so much concerned about testing for me (I either do, or I don't and I'll either die of it, or I won't - since there is nothing more I can do other than support the research, I'm not worrying that much about it). What I am concerned about is that my husband and I are planning on starting a family in the next couple years. Does anyone have experience with genetic counseling with regards to ALS? I currently live in LA so I'm wondering if I should look into it now while I'm in a big city that likely has more specialists?
I'm not so much concerned about testing for me (I either do, or I don't and I'll either die of it, or I won't - since there is nothing more I can do other than support the research, I'm not worrying that much about it). What I am concerned about is that my husband and I are planning on starting a family in the next couple years. Does anyone have experience with genetic counseling with regards to ALS? I currently live in LA so I'm wondering if I should look into it now while I'm in a big city that likely has more specialists?