kmendsley
Distinguished member
- Joined
- Feb 19, 2010
- Messages
- 434
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- Highland
Firstly, I am frustrated. I even waited two days before I wrote this so it wouldn't be too bad.
I went to neuro on fri. This is the one that saw me a year ago and said 'lets wait and see'. Unfortunately, also the last time I went to this neuro my mom tried to convince her that it was nothing more that I had but stress...yeah...my mom lives in complete denial and can easily 'persuade' others that she is right in her thoughts. I showed up on fri, without my mom this time. She looked and said, yeah well you have definiately progressed but 'not enough'. What the hell is not enough? It's not enough that I lost 1-2 inches of muscle in both of my legs. It is not enough that my talking now sucks, my walking is almost impossible, I can't even left my left foot anymore with footdrop...it just drags on the ground...etc. etc.
I am mad. This was supposed to be the big appt. where the neuro from my stupid medical group 'agrees' and cofirms the diagnosis so I can get disability. What does she do instead. 'Hmm lets put you back with physical therapy. "Something just went wrong with your connection in your brain"...what kind of diagnosis is this?,Or it must be stress like your mother stated. She told me one year ago that she would wait one year to see how I do. And here I am progressed so much, and she doesn't do anything! I HAD to make her even measre my calves....and that was my chief complaint!
How am I stresed? The only thing that stressed me out was this dumb appt. I work 5 hrs. a week and the rest I sit on couch sleeping or doing light physical therapy stretches.
I asked for a second opinion. She was mad and walked out of the room. Believe me, I would hope to God that maybe I don't have ALS, but something is definately wrong with my body and it needs an answer better than 'stress' and 'lets wait and see'. At the rate I am going, I am not going to be able to walk into my next appt. but crawl. Do you think everyone will take me seriously then? Oh yeah, being young sucks as well. Your symptoms are always chalked up to - eat badly and stress. Not all young people wreck their bodies...Don't assume...as in the world...it makes an ass out of u and me.
I went to neuro on fri. This is the one that saw me a year ago and said 'lets wait and see'. Unfortunately, also the last time I went to this neuro my mom tried to convince her that it was nothing more that I had but stress...yeah...my mom lives in complete denial and can easily 'persuade' others that she is right in her thoughts. I showed up on fri, without my mom this time. She looked and said, yeah well you have definiately progressed but 'not enough'. What the hell is not enough? It's not enough that I lost 1-2 inches of muscle in both of my legs. It is not enough that my talking now sucks, my walking is almost impossible, I can't even left my left foot anymore with footdrop...it just drags on the ground...etc. etc.
I am mad. This was supposed to be the big appt. where the neuro from my stupid medical group 'agrees' and cofirms the diagnosis so I can get disability. What does she do instead. 'Hmm lets put you back with physical therapy. "Something just went wrong with your connection in your brain"...what kind of diagnosis is this?,Or it must be stress like your mother stated. She told me one year ago that she would wait one year to see how I do. And here I am progressed so much, and she doesn't do anything! I HAD to make her even measre my calves....and that was my chief complaint!
How am I stresed? The only thing that stressed me out was this dumb appt. I work 5 hrs. a week and the rest I sit on couch sleeping or doing light physical therapy stretches.
I asked for a second opinion. She was mad and walked out of the room. Believe me, I would hope to God that maybe I don't have ALS, but something is definately wrong with my body and it needs an answer better than 'stress' and 'lets wait and see'. At the rate I am going, I am not going to be able to walk into my next appt. but crawl. Do you think everyone will take me seriously then? Oh yeah, being young sucks as well. Your symptoms are always chalked up to - eat badly and stress. Not all young people wreck their bodies...Don't assume...as in the world...it makes an ass out of u and me.