Tech2237
New member
- Joined
- Mar 9, 2011
- Messages
- 6
- Reason
- Learn about ALS
- Country
- US
- State
- WA
- City
- Puyallup
I am having a pretty difficult time. I am currently fixated on the fact that sometimes when I eat, I feel a crumb or small piece of food after swallowing that feels like its stuck to the side of my throat. Not enough to choke, but noticable. I can easily wash it down with a drink of water.
I am a 28 year old male. I have diagnosed Celiac sprue and GERD.
I've had around three years of wide spread body twitching. Sometimes they are confined to one muscle and will last all day, or even a few days but eventually go away, and then re-appear somewhere else on my body.
I know that I clintch my teeth alot and often find my jaw tired and sore. I have teeth marks around the outer edges of my tounge.
I don't have any weakness or atrophy. My doctor refered me to a neuro who looked in my mouth with a flashlight, tested my limb strength and ran several blood tests. He performed and EMG by putting the needles in one leg, and both arms and shocking me. He also did the test where the electrodes were taped to my skin. The results came back clear of any abnormalities. He said my refexes were fine and he did the test where they scrape the bottom of the foot to see a response, my toes didn't curl either way.
He told me he believes its BFS and said if I were ever to notice severe weakness or atrophy I should return because that WOULD point to ALS but as of now there is no concern. That has left me on edge like I need to constantly monitor my body, and I have been.
I'M so scared that its affected me to where people notice, I'm no longer outgoing like I once was, my wife thinks I'm depressed and I can't even enjoy my new son as I am constantly worried I'm dying and the doctors have missed something. I think I am especially worried about the food particles being stuck in my throat because I only recently noticed it, after my neuro appt. Other than a flashlight in my mouth, bulbar ALS wasn't explored. Sometimes I feel tounge tied, but Ive attributed that to my mouth being fatuiged due to me always clintching my teeth. No one has mentioned that I slur my words either.
Is there a chance this is the early onset of ALS? I don't know why I'm having so much trouble accepting the BFS diagnosis from the neuro. I don't mean to be un-compassionate to those who are truely suffering from the terrible disease. I just hope that someone here could help me further put my worries to rest, if they are unwarranted.
Thanks Kindly
B
I am a 28 year old male. I have diagnosed Celiac sprue and GERD.
I've had around three years of wide spread body twitching. Sometimes they are confined to one muscle and will last all day, or even a few days but eventually go away, and then re-appear somewhere else on my body.
I know that I clintch my teeth alot and often find my jaw tired and sore. I have teeth marks around the outer edges of my tounge.
I don't have any weakness or atrophy. My doctor refered me to a neuro who looked in my mouth with a flashlight, tested my limb strength and ran several blood tests. He performed and EMG by putting the needles in one leg, and both arms and shocking me. He also did the test where the electrodes were taped to my skin. The results came back clear of any abnormalities. He said my refexes were fine and he did the test where they scrape the bottom of the foot to see a response, my toes didn't curl either way.
He told me he believes its BFS and said if I were ever to notice severe weakness or atrophy I should return because that WOULD point to ALS but as of now there is no concern. That has left me on edge like I need to constantly monitor my body, and I have been.
I'M so scared that its affected me to where people notice, I'm no longer outgoing like I once was, my wife thinks I'm depressed and I can't even enjoy my new son as I am constantly worried I'm dying and the doctors have missed something. I think I am especially worried about the food particles being stuck in my throat because I only recently noticed it, after my neuro appt. Other than a flashlight in my mouth, bulbar ALS wasn't explored. Sometimes I feel tounge tied, but Ive attributed that to my mouth being fatuiged due to me always clintching my teeth. No one has mentioned that I slur my words either.
Is there a chance this is the early onset of ALS? I don't know why I'm having so much trouble accepting the BFS diagnosis from the neuro. I don't mean to be un-compassionate to those who are truely suffering from the terrible disease. I just hope that someone here could help me further put my worries to rest, if they are unwarranted.
Thanks Kindly
B