siscutt
New member
- Joined
- Nov 11, 2010
- Messages
- 3
- Reason
- PALS
- Diagnosis
- 01/2000
- Country
- UK
- State
- hampshire
- City
- portsmouth
I was first suspected of having MND over ten years ago and after a series of tests it was confirmed vaguely. My GP signed me off work and the prognosis was quite gloomy. I was unhappy with my consultant and asked to change. The new consultant was much younger and more positive. I had been signed off work and effectively registered disabled and yet my only real symptoms were confined to my left hand, arm, and left side of my chest. After a period of 'mourning' (I had three young children) I decided that I had enough and would return to work. Ten years on, and the main degeneration is confined to my left hand, which is skeletal and pretty useless. My left arm is visibly smaller than my right. The most significant other symptoms I can report are terrible cramps all over my body that are much more frequent, and the reason that I have just joined this forum. I have to say however that I know I am lucky, but I have always had a positive attitude throughout the illness, in fact I have tried not to even acknowledge it's existence. The cramps have become so painful that I will revisit my consultant, but only in an attempt to get some treatment for the cramps.
Wishing everyone the best, and available for comment at most times.
Wishing everyone the best, and available for comment at most times.