IcyPinkLemonade
New member
- Joined
- Oct 4, 2010
- Messages
- 5
- Reason
- PALS
- Country
- US
- State
- Connecticut
- City
- New Britain
I am currently being diagnosed with PLS. I have been clumbsy for many years, lots of broken bones, I currently have tilted ankles (too many sprains, the ligaments are loose) and am wearing two ankle braces (I almost wrote braclets, I would rather they be jewlery than needed to walk...). Long story kinda short, I fell down the stairs at work one day because I was getting accustomed to my braces. Caused lots of back pain. Went to physical therapy where they cracked my back, that helped for a while. Then it got worse. Then my arms started going numb/feeling heavy. Thats when I went to a back doctor. Did an MRI saw I had a bulging disc in my neck. Said that was causing the problems. Put me on traction where they pull your neck, thatg helped a little for my back and arms, nothing for my legs. Then I started getting pain in my lower back. I was then asked by my back doctor if I had muscle spasams. I told him I did, I just thought they were normal. Turns out its NOT normal for your leg to freak out when you are just lying in bed. Sent me to neurologist. Did all the same bending, poking, reflexy kind of tests. Said I had PLS. I am going thru all the testing to eliminate everything else cuz sadly not everything can be diagnosed with a blood test.
Ok, so that was all back story. Here comes the good stuff.
I have recently been prescribed baclofen. I take 15mg every two hours (its normally prescribed in 4 hr incriments but it only works for me in 2, doc knows). I take 30mg before bed. This helps out with all the pain in my upper back, my arms.
I am having now SIGNIFIGANT PAIN in my lower back whenever I want to do something, such as walk more than around the office. I went to Salem, MA yesterday with my friends and couldn't enjoy it becausre I had to bend over every few mins to try to stretch my back out and it just felt like I had a charlie horse times TEN around the small of my back of my back.
The baclofen isn't touching this pain and I need something that will. I do NOT wanna start taking narcotics, I am only 24 and if I am gonna have this for the rest of forever, I do not want to start down that road. Has anyone used any other medications or something that will help? I do not want to stop doing things because I am sick, I am not ready for that yet. PLEASE help me!
P. S. I would just like to state that I am a "larger" person. I don't think that has anything to do with all of this, because as I WAS actively loosing weight (trainer, swimming, etc.) the pain was getting worse in my lower back, not any better.
Ok, so that was all back story. Here comes the good stuff.
I have recently been prescribed baclofen. I take 15mg every two hours (its normally prescribed in 4 hr incriments but it only works for me in 2, doc knows). I take 30mg before bed. This helps out with all the pain in my upper back, my arms.
I am having now SIGNIFIGANT PAIN in my lower back whenever I want to do something, such as walk more than around the office. I went to Salem, MA yesterday with my friends and couldn't enjoy it becausre I had to bend over every few mins to try to stretch my back out and it just felt like I had a charlie horse times TEN around the small of my back of my back.
The baclofen isn't touching this pain and I need something that will. I do NOT wanna start taking narcotics, I am only 24 and if I am gonna have this for the rest of forever, I do not want to start down that road. Has anyone used any other medications or something that will help? I do not want to stop doing things because I am sick, I am not ready for that yet. PLEASE help me!
P. S. I would just like to state that I am a "larger" person. I don't think that has anything to do with all of this, because as I WAS actively loosing weight (trainer, swimming, etc.) the pain was getting worse in my lower back, not any better.