[email protected]
Member
- Joined
- Mar 10, 2009
- Messages
- 10
- Reason
- CALS
- Country
- US
- State
- MN
- City
- Minneapolis
My dear husband passed away on 04-08-10. I came to these forums frequently and read posts and sometimes wrote in them too. I had found many helpful suggestions and implemented several of them.
ALS is a very hard disease to see anyone go through. Bob's abilities were gradually taken from him until he was no longer able to do anything without my help and the help of a hoyer lift, power chair, hospital bed, condom catheters, feeding machine ... the list goes on.
Although intellectually I know it was no way to live, my heart tells me something completely different. I was hoping he would be able to live longer and I would have cared for him willingly. It was hard work, but at least I was able to touch him and tell him I loved him.
Bob was diagnosed in July of 08 and had a good year until August 09 when he started falling. Upon diagnoses the doctors told us 2-4 years .... he didn't make it to the two year mark, and I feel ripped off!
God Bless all PALS and CALS
In loving memory of my Bob
ALS is a very hard disease to see anyone go through. Bob's abilities were gradually taken from him until he was no longer able to do anything without my help and the help of a hoyer lift, power chair, hospital bed, condom catheters, feeding machine ... the list goes on.
Although intellectually I know it was no way to live, my heart tells me something completely different. I was hoping he would be able to live longer and I would have cared for him willingly. It was hard work, but at least I was able to touch him and tell him I loved him.
Bob was diagnosed in July of 08 and had a good year until August 09 when he started falling. Upon diagnoses the doctors told us 2-4 years .... he didn't make it to the two year mark, and I feel ripped off!
God Bless all PALS and CALS
In loving memory of my Bob