New? Introduce Yourself - Say Hello

Hi Vickie. Welcome. Hope we can offer help and support.
AL.

Saying Hello

Many thanks to Al for helping me find this site. I look forward to sharing thoughts, feelings, symptoms etc, etc. with all. I suffer from progressive MND with a probable diagnosis from Mayo as PLS. Glad to have found you.

Raymond B.

Hi everyone,
I've been lurking daily for about 6 months...shortly after a close family member was diagnosed with bulbar als. I have done tons of research, but the best information I've found has been through this wonderful forum - thank you to all who contribute your wisdom, experience, courage and support.

Welcome Vemma. I hope that we can be of some help to you. AL.

This is my first time here so I'm going to browse around and get familiar with everything. Happy to be here

Welcome to all the new members. I hope you feel at home and jump in with any questions you might have. This is a friendly group of caring people who are going through the same things you are now facing. We only want to help.
God Bless
Capt AL

Hi James -

Welcome to the forum. Your bio says you've been diagnosed with ALS. If this is new for you, I recommend browsing lots of the old posts. This gives you a good overview of issues you may encounter, information and resources you can access, and an introduction to the folks who visit here.

Nice to meet you.

Liz

Thanks Liz for the info thats what I will do browse the old information and see what I can find. Thanks again James

New member

I am new to this forum and pray for you all since getting acquainted by reading your posts.

My husband, 57, has been sick for the past 9 months. No pain at all. Muscle wasting in both shoulders, numbness in both arms and now having difficulty with his neck (he says it is hard sometimes to keep head up)

He has been seeing a local neurologist that feels it is MMN (Multifocal Motor Neuropathy with Conduction Block). I asked for a recommendation to go to Phila. and we saw a specialist at an ALS Clinic that performed more extensive EMG and doing a spinal tap next week. He, the ALS doctor, told us to hope for the best but a possible diagnosed of PMA as he has seen very few cases of the MMN.

We are trying to process all this and it is mind boggling.
While my sweet husband sleeps, I search the internet and found your wonderful site.

Sorry I am posting so long on this thread, but I am clueless when posting a new post and not a computer person.

I will continue to pray for you all. No coincidence that I found you and will check in when I know more.

God bless you all!
Patty

Hi Patty,
Glad you found us. I hope that you can find the support you need here no matter what is wrong with your husband. Thanks for the prayers, and know we will also be praying for your situation.
God Bless
Capt AL

P. S. A little something for those who need a hug today:

Dear Capt Al:

Wow! That is actually what I need and it seems alot of you wonderful people are all looking in the right direction for our help. Look Up!

May God bless you & your loved ones and give you the Peace that surpasses all understanding!

Patty

New here too

Hi, I am new here today as well.
I posted a message in the caregivers forum...it looks very probable that my mother has bulbar ALS.
I'm looking forward to gaining as much knowledge, support and suggestions as I can as I help my family deal with this.

Welcome to the forum everyone. Jump right in with any questions or comments you have. This is a very friendly site and we are all here to help one another deal with the monster ALS/MND.

If you need specific info you might be able to find it using the search icon above. There is a world of great information and great people here.

God Bless
Capt AL

glad to be a member

I am a brand new member and new to forum commmunicating. Not quite sure how to do this forum and undoubtedly may make mistakes as I learn.
My husband has PBP with an indication of full fledged ALS in the off wings.
I am trying to learn how to help him through all that will unfold. ALS is an individualistic disease I am told.
He is 16 months in, and struggles daily.