Moving forward

Tillie - I have a feeling this will not be sorted quickly with my Dad.

Mom for now is status quo

Today I’ve done a workout and some much needed cleaning.

Snow is supposed to start tonight and then we will be snowed in, I hope to get some things accomplished while I can’t go anywhere.

Well snow held off until last night.

Yesterday was truly a good day. I was over to Mom’s and ran a few errand, but by dinner time I felt so peaceful. It felt awesome to feel like that. Not sure if I will see that again today or not. I was happy for that ray of sunshine.

Hugs

Hopefully a little more of those peaceful times are ahead of you.

Today has been busy, but good.

Visited Mom and she got drained, then up to see Dad. He was sleeping due to being up from the middle of the night, I left him sleep. Ran an errand before coming back. Then did work stuff.

Tonight I will relax

Good day

Wow a lot since I posted. Did see Dad on Tues, I fed him lunch and returned laundry. Yesterday the home called and asked if I could ride with dad as they didn’t have an escort. I said yesterday but was a bit annoyed.

Well I was up at 1 AM being sick. That went on most of the night. Needless to say I could not take Dad today and he didn’t get to go or get his foley out.

Dad is really failing. I saw the Dr on Tues while I was there, he’s very concerned about his weight loss which is getting really bad. He also didn’t think he was a candidate for a feeding tube and I agree. He would pull it out. It’s so sad, and so hard to watch this right on top of Brian.

Have a good night all

Sorry to hear about your Dad, Sue. And I sure hope you're feeling better soon too.

Hugs!

Hey Sue,

Sorry to hear this about your dad. I wish there was a "hugs" button. Instead, I'll just send you one. Such challenging times.

Kathy

Oh man sorry to hear your dad is not doing well. Physically my mom is pretty stable do at least that. I hope things get easier for you soon Sue.

To be newly widowed and have so much happening with your parents is cruel indeed. People are facing a lot more of this now I think. Fifty years ago, your parents and my mom would likely have all been gone before they got this far so it would have “just” been lost and losing husbands.

It’s the other side of longer lives.

More hugs coming to you Sue - so cruel for him to just be slowly fading away like this, and you running to keep up still.

I read along Sue. It's so apparent what a great daughter you are. So caring and loyal. I'm sorry that you have so much on your plate after losing your PALS (and during even) and sincerely hope that things start to slow down a bit for you. Make sure you squeeze in some peaceful time for yourself when you can. Your awesome.

Thank you Eveyone.

Lenore - my folks are 84 ad 82, so not too far past the norm yet. I think the bigger issue was losing my husband so young. Most couples have their spouses to support them with their folks, not in our cases though. I’d almost call it the sad reality of ALS, taking spouses way too young. 56 is way too young and there have been others here who’s spouses/CALS were even younger than that.

I’m feeling much better today. Just was eating some breakfast. I made a bit too much, so I’ll save the rest and have it later if I feel up to it. I’ll take it slow today.

DS and I are supposed to go to the RV show later today. I love looking at those. Then we might get dinner. I said, lets see how breakfast sits first.

A few things on my plate for today. Nothing major, I’m not going to push it.

Hugs

So sorry your dad is worse. How far is he tangled up in dementia by now? A feeding tube could quite likely be a trap.

I so. I what you mean about your husband’s support with the parents. Mine was a champ at all things with my mom. When he retired particularly, he’d just go over and do whatever was needed for her. I so miss that.

Glad you had a better day and you are feeling better.

Sue..I hope you had a great time looking at RVs. I love doing that too. Love the whole camping thing. So peaceful. I hope you dreamed of all the places you could go when your life settles down a bit. You deserve it.

Hi Everyone,

I did go to the RV show and it was probably too much or maybe the dinner after was, more detail.

Just as we were getting ready to go to the show, the home called. While we could not get Dad to the appt on Thursday, they did remove the foley to try a voiding trial. Well by Friday afternoon his bladder was full. They could not get a catheter back in him. They were going to try and just straight cath so the foley could stay out. So they were transporting him to the ER to see they could get a foley back in under ultrasound. I told them, I still had the flu and could not meet him at the ER. They needed to tell the ER he needs a sitter (so he could not climb out of bed). At first I felt guilty, but I didn’t know if I was healed and I didn’t want to give him the flu. And I needed to do something for me. Emotionally I am not up to watching my Dad fail like this.

The show was good, and I came away with some really great ideas and thoughts. We did stop for dinner. I had a salad with chicken. Figured that was pretty light. Well yesterday morning I landed not the couch as my body did not agree. So, it was another “off” day for me yesterday. Had to cancel out of my neice’s baby shower, but it happens.

This morning, so far, I’m feeling ok. We will see what the day brings. Still eating in small bits and one macro at a time to make digestion easy.

Hope everyone is well