Tkhalaska
New member
- Joined
- May 20, 2018
- Messages
- 8
- Reason
- Loved one DX
- Diagnosis
- 05/2019
- Country
- US
- State
- AK
- City
- Eagle River
Not a huge update, but at least something. I had gotten sidetracked when my father passed away June 10 - 93 good years. Now ready to get back to it.
We have compiled the family tree to send in to NU, and I am also sending them the names and contact info of the siblings that have consented to participate.
My SIL ( wife of the brother who passed from ALS-like condition but did not have a diagnosis) has been in touch with Nailah and the medical school his body is donated to. They are going to be able to work together to have a sample sent to NU to process.
We have heard nothing more from the family of my SIL who passed May 24 with an ALS diagnosis, so we are letting that rest.
Thank you all for the advice, support, and just listening.
We have compiled the family tree to send in to NU, and I am also sending them the names and contact info of the siblings that have consented to participate.
My SIL ( wife of the brother who passed from ALS-like condition but did not have a diagnosis) has been in touch with Nailah and the medical school his body is donated to. They are going to be able to work together to have a sample sent to NU to process.
We have heard nothing more from the family of my SIL who passed May 24 with an ALS diagnosis, so we are letting that rest.
Thank you all for the advice, support, and just listening.