I feel horrible for posting here and I hope to god I don't belong here, but I've been dealing with some troubling symptoms that I found out could possibly be als. Before I get further in I have been evaluated by a neuromuscular specialist for my symptoms which are shortness of breath climbing stairs or doing anything very strenuous and now it's gotten to the point where is at rest also but not to bad. I also have these "spells" as I call them where my breathing gets really bad it feels like I can't feel myself breathing, my throats feels like it closes up, my ribs feels so tight, and my nose feels like it's clogged.
I also deal with twitching all over, but here lately mostly in my ribs and I'm constantly yawning all day like a mad man ad I am constantly sighing and taking deep breaths. The neuromuscular doctor is puzzled by the breathing issues, but my pulmonolgist performed a breathing test a few weeks ago that showed weakness. He seemed quite puzzled by this and told me to go back to neuromuscular doctor who also is puzzled. I had a clean emg last year when the twitching started, but I wasn't having the profound breathing issues then either. My hands are starting to cramp up a lot when doing certain tasks. The neuro is doing another emg in 4 weeks and I'm very concerned at this point. Any one had any similar stories of how they presented?
I also deal with twitching all over, but here lately mostly in my ribs and I'm constantly yawning all day like a mad man ad I am constantly sighing and taking deep breaths. The neuromuscular doctor is puzzled by the breathing issues, but my pulmonolgist performed a breathing test a few weeks ago that showed weakness. He seemed quite puzzled by this and told me to go back to neuromuscular doctor who also is puzzled. I had a clean emg last year when the twitching started, but I wasn't having the profound breathing issues then either. My hands are starting to cramp up a lot when doing certain tasks. The neuro is doing another emg in 4 weeks and I'm very concerned at this point. Any one had any similar stories of how they presented?