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LEsh

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Hello!
I'm new here and this is my first post.
It all started in 2006, I started getting numbness and tingling in my limbs,Muscle spasms and daily migrains. I would drop things, that (I thought) that i had a good grip on. One morning i got up to use the restroom and without reolizing, that my foot was asleep....I fell to the floor.(feeling came back in my foot moments later, after rubbing) I was diagnosed with fibro later that year,due to normal MRI and symptoms.
Quickly I became unable to lift/open things, that i one was able to rather easy b4. In 2008, I went to reach for the railing on the steps and my rite arm went limp (i was able to regain use many hr. later) but er. doc. said it was likele just a pinched nerve. I stated having problems in my joints and feeling like my hips(and or knees) were giving out if i just walked short distances (like to mail box) My hands began cramping (actual painful charley horses in hands at times, lasting several min. ) Muscle spasems started happening all over my body(including my face),lasting for long periods of time and painful.
2012 Started haveing problems swallowing (liquids and foods seemed to get stuck very often and felt like throat closed off,not letting anything go down) This happend frequently,but not EVERY time. Also started getting electric like pain shooting up from my left toes,up my leg (so painful,that nobody could understand)
2013 started having swallowing problems (felt like throt was swelling and spit would not go down) Gasto diagnosed me with GERD. I also get massive cramping in the arches of my feet,that can last for over an hr. Had eletro testing on my foot, and the testing was discontinued,due to the pain it caused and me almost kicking the doc's face off from the reflex it caused
2014 Having trouble breathing at times (like asma/allergy) symptoms all of the above still goes on often ,but not constant (other than fingers are constantly locking and muscles /joints sore) I have breathing treathments and an inhailer now to help with my breathing.
Does this seem like it could be ALS, rather than the MANY seprate diagnoses that I got for diffrent symptoms?
 
GERD meds can cause/exacerbate electrolyte imbalances. Cramping/twitching/nerve pain are all associated with these, and with dehydration as well. Do not see ALS in the long course you describe. No atrophy, no progressive weakness. I would have Ca, Mg, K, vitamin levels, ferritin, etc. drawn. and focus on potassium/calcium/Mg in diet in short run. And fluids.

With so many troublesome symptoms, some anxiety would be normal, and that feeds on itself. If you are able, I would travel to somewhere quiet and stay for a few days. Alternatively, make time every day for meditation, warm baths, hot showers, music, poetry, art, whatever feeds your soul and helps you center.
 
Thank you for responding lgelb!
Actually ,I have not taken my GERD meds in a long time (just not one who likes taking pills ) The only thing I take rather often is my ibro (800 mg.) and flexeril (when i can't take it anymore! I do have loss of muscle tone (but it is in both arms/not just one), wich I just thought maybe it was due to weight loss?Doc had lab test run this last month and lab test came back, i'm low in vitamin D (i was given high dose of vitmin D to take once a wk for 8 wks)elivated colesterol and said i'm boderline diabetic. He seemed conserned last wk. as he preformed reflex test and also wanted me to fallow his finger from my nose. Thogh i was a bit shaky....I didn't think i did too bad? He also looked into my eyes , with a light and then told me that he was conserned,, that I had something neurological going on. I have had constant ringing in my ears, for over a year. Though I have problems swallowing, I do try to keep hydrated (my thoughts were possible dyhydration at the begining of all this) I have ben having much trouble getting up from a sitting or laying position for about two + years (getting worse) As well as I'm alway fatigued.

A little past and Family Medical history is as fallows:

I am a Katrina survivor. We did have to drink water with bleach in it to kill any bacteria (symptoms started shortly after Katrina, this is why i'm mentioning this), but no other family member (that I was with during Katrina has the same happening)I have an Aunt (on father's side, that passed from Lupus) a cousin on (Mother's side) with Lupus, a cousin (on fathers side) with MS. My father has circulatoy problems (arms turn purplish red) Also: when I was born, I was purple (my mom said I was called a blue baby?) She said I was rushed out of delivery ,so they could get me breathing. Also: my feet were turned out (learned to walk on the sides of my feet) and later needed corrective shoes, with what is called heel cookies. I do still have very week ancles and never was very coordenated/stedy. Also: in 1978, I had a deadly form of the flue (called The Russion Flue) Only a handful of people had it in our area and I was the only one in our area to survive it (one of my class mates passed away from it/I was in first grade) I could not hold any fluids down and due fevor being so high and for so long.....Most of my blood vessels burst in my body.I was in the hospital for over 3 wks.I know this is alot to take in, but figured, that I would give as much history as possible.
 
L gelb has given u good comments. Your answers are unlikely to be found here. Get with an internist and mental health professional.
 
Hello there.

Your symptoms sounds abit hard and i understand if you are worried and actually having anxiety over it. Who wouldnt :)

What you describe, does not sound like ALS. You ask what i Think? A 24 year old, that have big anxiety over my own symptoms. I am also being seen as a hypocondric on this forum. I know you read about people with ALS that have been going years with symptoms Before diagnos. You must see that this is VERY VERY rare. Numbness and tingling are also very rare with ALS. Some ALS patients gets MS later on in the disease and its not very uncommon, but you should not worry about this, because your symptoms started with numbness and tingling. There is also diff describings what numbness is. ALS patients gets what they Think is numbness, but its not. MS kind of numbness is when your foot, get numb, and you touch the skin, you wont feel anything. ALS "numbness" is when you actually have all feelings in leg, even if it feels numb.

Listen to me. Im not a expert... But this does not sound like ALS. This can be a virus, or Another disease like Isaac syndrome? Isaac syndrome gives your symptoms, and its also rare, and it can take years for docs do diagnose it. I have also been helping people with Lyme disease with info, even if they was NEG on IGG/IGM and Western blot. And they have recover after years of treatment, and some of them have this kind of symptoms. You should test yourself for Heavy metals, toxins(Maybe leaky gut), Gluteen allergy, anemi diseases like PNH, Babesioso, Lyme disease, Ehrlichia, Bartonella, Encapilithies. Good luck...
 
Christopher, your wrote ("Listen to me. Im not a expert... But this does not sound like ALS.") Here it is... no one is listening to you. You are not an expert by any means but 'maybe' an expert in rambling nonsense. You wouldn't know ALS or it's real symptoms if they were a high speed train that knocked you into the middle of next week. You, (yourself) needs help that YOU will NOT find here. Cease.

PS. Learn to spell the accurate referral. It's spelled hypochondriac.
 
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You seems to like comment everything i says. And excuse me, i am from Sweden, and american is not my home language. I have been very sick for long time, and i am getting sicker. My legs has totally stoped to listen to me, bodywide faciculations and twitching. Getting sicker for every day. AND not only daytime, its also night. So excuse me again... "for having to much time over"...

What ever. i leave this Place for ever......
 
I thought, that people came here for support? Some older members here seem to be getting there kicks, from being rude.. Wow!If people are made to feel uncomfortable about there questions/comments how are they going to get the help/support they need? I think some of the rude people feel power, by running people off this site (are you that unhappy) Serriously people.....GET ALONG AND ACT LIKE ADULTS! DANG!
 
This discussion has been up and running several times.

Every day, several people come here to ask for help. I was one of those people back in 2013, and I am still here, being in the diagnostic process.

PALS offer advice, support etc and sometimes it is hitting a brick wall; people do not listen, they write ten posts about the same thing, and this causes frustration. I have myself said before that there is no need to be rude, even though I understand the annoyance.

BUT, Christopher here, has been commenting enumerous threads in a manner that is not good. He has been told, and still goes on with it. Everyone can make mistakes, but there is a time when you have to listen as well.

Getting back to the point; Lesh, if you are worried about neurological issues, ask for a referral to a neurologist. If you have already seen one, ask for an EMG. You however seem to have had anxiety issues as well for some time, so as Al is suggesting, you should probably see a counsellor as well.
 
LEsh, I have re-read the posts and I find none where anyone was rude to you. My reply was to Christopher (who Kosmoskatten accurately explained why). Maybe two others who replied to you wrote something you didn't like and you took as rude... is your opinion. So, re-read the replies before you get your kicks lecturing others. No one was rude to you. Yes, seeing a mental health professional may help you deal with the myriad of symptoms you have that are not related to ALS.
 
LEsh, I have re-read the posts and I find none where anyone was rude to you. My reply was to Christopher (who Kosmoskatten accurately explained why). Maybe two others who replied to you wrote something you didn't like and you took as rude... is your opinion. So, re-read the replies before you get your kicks lecturing others. No one was rude to you. Yes, seeing a mental health professional may help you deal with the myriad of symptoms you have that are not related to ALS.

And the hits keep coming :)

Well said and accurate!
 
You have a wide variety of symptoms it seems, and I'm sorry to hear that. Some of your symptoms may be ALS-like, but I'm not a neurologist so I can't say. Have you had the series of tests required to diagnose disease? That is essential. Until you have them, everything is weak guess work. Besides MRI's, you'll need extensive blood work, EEG, EMG, AND EVALUATION BY A NEUROLOGIST who is very knowledgeable in PERFORMING and evaluating the EMG and who can evaluate your condition properly. --- Take care.
 
I'm not saying people were rude to me (per se), however there is not any need to be rude to anyone! I asked other's opinions and that is what I got! There is not any need to be upset with other people's opinions to my question (correct or wrong, it is there opinion) My opinion: As taught as children......If you can't say anything nice, Don't say anything at all! I thank everyone for there opinions and evaluate each one as it fits me/my situation.

Ok, off my soap box.....

I am a bit anxious about finding the root to my deteariation in health. At this age, I should not have such problems. The problems are real (not made up/though I wish they were) and It is rather frustrating, that I can't make my body work the way I want it to and enjoy doing the things I once had with my kids (my body just won't let me and it makes me mad, frustrated and sad) My doctor has given me breathing exercises to releve the anxiety over my health and to help relax my muscles.
I have had a normal MRI, unconclusive eeg (about kicked doc's head off and he stoped the test), blood test shows (low vitamin D,High colesterol, borderline diabetic) I will be going to Cleveland Clinic Als Specialist this month also!
 
is it eeg or emg (when they shock the heck out of you?) Well that is the test that was unconclusive, because i about kicked off the doc's face (not meaning to)
 
The emg is the one with the little needles usually in the extremities for limb issues may also do the back, external throat,or possibly tongue maybe facial too. EEG I have never had but electrodes on head to test brainwaves. Don't think it hurts.
 
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