Hi Everyone,
I’m not sure if I should start a new thread, as it’s a different topic.
I was wondering if I could have some input on the diagnosis procedure of als in particular. It seems that most people come here to ask questions that can’t really be answered because the disease is so complex
It really can only be answered by the doctors! But isn’t the process from symptoms to diagnosis unbelievablely long and often it isn’t diagnosed until significant loose of neurons!
Does anyone know of any new methods being taken to actually diagnosis earlier on! I’m just speaking my mind here, as none of my friends or family would understand what I’m going on about, one thing that I haven’t heard much of here is hyperexcterbility being a precursor to als, which I think is what people are referring to, when they say they twitched before weakness
And I’ve read many stories of people having clean emgs then finally having a dirty one! I’ve also read about surface emgs being helpful to diagnose als, but yet these never seem to be things the specialist talk about!
Aren’t the “preclinical signs” extremely important to identify and could be a huge help in finding treatments, which I’m sure studies are being done about that as we speak! My personal experience so far seems to be unless I walk in with a limp or unable use my hands or barley talk! Then I’m apparently fine
I absolutely love this forum, and I’m so thankful that I can talk to you all! It’s fantastic that it creates a platform for people to talk even if there not diagnosed, and that creates more exposure, which is so important!