Momofone
Member
- Joined
- Jul 10, 2015
- Messages
- 15
- Reason
- Lost a loved one
- Country
- CA
- State
- Ontario
- City
- Toronto
Hi there,
My family has been burdened with C9 - we’ve lost 6 amazing people in 2 generations, so far, including my mom, Godfather, and Gramma. I’ve struggled with anxiety over this disease for over a decade now. The anxiety presents itself in the form of symptoms and I trick myself into believing that I have ALS. I’m aware of this now, and know so much about the symptoms of ALS, but with each “episode” of anxiety, new and different symptoms presents, showing how powerful anxiety truly is.
I’m leaning towards genetic testing at this point. I feel the uncertainty of it all is wearing on me. How do I know when the time is right?
I just got back from speaking with a counsellor who thinks knowing will empower me. That knowledge is power. I’m just really torn and know I have to make this decision on my own, but value your input too.
Thoughts? What would you/have you done in my situation?
My family has been burdened with C9 - we’ve lost 6 amazing people in 2 generations, so far, including my mom, Godfather, and Gramma. I’ve struggled with anxiety over this disease for over a decade now. The anxiety presents itself in the form of symptoms and I trick myself into believing that I have ALS. I’m aware of this now, and know so much about the symptoms of ALS, but with each “episode” of anxiety, new and different symptoms presents, showing how powerful anxiety truly is.
I’m leaning towards genetic testing at this point. I feel the uncertainty of it all is wearing on me. How do I know when the time is right?
I just got back from speaking with a counsellor who thinks knowing will empower me. That knowledge is power. I’m just really torn and know I have to make this decision on my own, but value your input too.
Thoughts? What would you/have you done in my situation?