Status
Not open for further replies.

amy2L

New member
Joined
May 14, 2015
Messages
4
Reason
Learn about ALS
Country
LUX
State
Luxembourg
City
Luxembourg
As I write this, my arms are already quickly losing strength, so please excuse typos...

About a year ago, my left arm/wwrist started getting vey weak and painful from time to time. Back in March of this year, I finally decided to go to my GP thinking it was a strain. she noticed aweakness and lack of strength (which I had never noticed before) and sent me for the nerve conduction tests and I believe an EMG as well (foreign country so they're called something different here). I don't think this neurologist took me very seriously considering my age. But these past 2 months it seems to have "spread" to my right arm now, there are bouts of twitching and shaking that don't go away for days at a time (uuncontrollable up to my shoulder), I'm seriously losing grip in both hands and often have little strength. I have constant tingling in my arms and hands and they 1lso get very cold and lose circulation sometimes, now beginning in my feet as well... sometimes my leg seems to give put underneath me. Then I will have a few days with vey little symptoms before flaring up again, a bit worse each time.

I've read a lot of things about various nerve, muscle, disorders, etc lately. I hope this isn't all in my head, but a heavy depression is settling in too and I'm just worried that my family and doctor will think I'm making this all up...

Do you have suggestions or tips to offer some help or ideas? Are these actually usual signs of ALS or am I on the wrong track? As I live in Europe, seeing specialists and getting tests takes a long time, so I still have 2 more months to wait just for my MRI scan...

Sorry for the long rant, I just hope someone can offer me real advices that aren't from crazy sites like Wikipedia and webmd, etc...
 
Once more with the symptoms... is it normal for hands to stiffen and curl up as well? It makes typing so difficult as I now have to hen peck at the keyboard most days. And with spasms up and down my forearms, does that indicate anything?

I don't mean to be overly anxious or a hypochondriac on this site, just would like to possibly find some help in the meantime between tests...
 
An EMG is a test where they put tiny needles into your muscles. If that was normal that alone points against ALS. So do your age, your comment about it coming in flares, the pain and the tingling. None of those sound anything like ALS. I am sorry you are going through this but glad to say you are in the wrong place for an answer. Good luck
 
Thank you, Nikki for pointing that out. I wasn't highly convinced it would be ALS, however many sites on the Web have overwhelming information and I'd just like answers about what is going on with me, so I hoped to get some straight, honest comments about this disease.. I hope this doesn't sound completely terrible... Thank you again xx
 
Many sites on the web are full of crap when it comes to als. That's a fact.
 
GregK, yes I absolutely agree! It's incredibly frustrating when I'm trying to find some possiblz answers. Even legit medical websites seem to contradict each other. Obviously I'm no medical professional at all, but I keep hoping if I could pinpoint what it might be I could at least find some home remedies to help me get by until the doctors figure out what's wrong. Its frustrating when I keep dropping things and always have to ask for help to do simple tasks, etc...
 
It would probably be a good time now to leave this site then.
Doesn't sound like ALS, which is fantastic news.

There aren't any home remedies that will do squat for a terminal disease.

Live what you have now, the tests will show what they show and you can then start to work out where you are at and what can be done with your doctors.

All the best
 
Status
Not open for further replies.
Back
Top