aman_pec
New member
- Joined
- Jul 11, 2007
- Messages
- 4
- Reason
- Loved one DX
- Country
- IN
- State
- Punjab
- City
- Chandigarh
Hi All, This is my first post on this forum. My father has been suffering with ALS for last 5 years and he's on intrusive mechanical ventilation for last 3 years at home. Myself and my mother provide care to him and we have to do awful lot as you maybe very well aware. I require one information regarding one problem we have to face. My father has problem in bowel movement and its not possible for him to pass stool by himself. We give him a tablet of glycerine through anus. After 2-3 hours when he feels like passing stool, we have to take him to the commode and still we have use hand/finger to make way for it. Isn't there any tool or any better method available for this? Any information in this regard will be highly appreciated.
Also, what can be done about the excessive saliva. We belong to India and here, even though medical support system is good, still for terminal illness like ALS, healthcare system does not encourage carrying on the way we are doing at present. its been really hard out here because when we consult specialists, they are very pessimist to begin with. Most of their advice hovers around one thing - this is terminal illness, why do you want to continue the torture of your father as well as yourself. Due to such problems, I am facing problem getting right information that can help my father and us all lead a better life.
Also, what can be done about the excessive saliva. We belong to India and here, even though medical support system is good, still for terminal illness like ALS, healthcare system does not encourage carrying on the way we are doing at present. its been really hard out here because when we consult specialists, they are very pessimist to begin with. Most of their advice hovers around one thing - this is terminal illness, why do you want to continue the torture of your father as well as yourself. Due to such problems, I am facing problem getting right information that can help my father and us all lead a better life.