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banidi

New member
Joined
May 29, 2014
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Reason
Learn about ALS
Country
ir
State
w.azarbayjan
City
urmia
hi
i have been twitching for 20 months,first i had a wired feeling in my right leg,it atrophied a bit,then after 6 months my left leg was uncomfortable too,now my right hand,i can't use it alot,it aches and is heavy,i had 3 normal emg's and DRs don't think that my atrophy of right leg and right side of my ribcage is important till my emg is normal,i'm 21 years old and i am a medical student,i'm very worried,i don't know what to do,i wanna ask you about my symptoms,i have all of them but i don't have weakness that the doctor could see,i can walk,run raise my hand and other thing but all with force,and i fell the food in my throte after swallowing,i usually can't take a deep breathe,i mean i have bulbar and limb and respiratory symptoms together...
my emg's were short,for example one minuite per muscle,i think it is not enough
sorry for my bad english
were you like me? do you know anyone like this with all this symptoms and clear emg after almost 2 years of problems?
 
If the EMG is normal you are out of the woods. Few people IMHO twitch for 2 years who have ALS. The nerves die out way before then....mine did anyway in a far shorter period......whatever...to each his own..
 
see if you can get across to Tabriz and find a good clinic for full checkup.

Good luck!
 
thanks for your answers,i will go to tehran for better assesment,but i wated to know if it is possible? my last emg was done yesterday which 3 of my limbs,my respiratory system,and my bulbar abit is affected i think,but the emg was clean
i wanna know what is the process of emg like? and how long does it take?
 
you should be able to find a very good ALS clinic in Tehran.

Good luck!
 
i had been to tehran and an als specialist examined me and told me it is not als,i asked him to do an emg but he told its not necessary to do that,i'm sure they are benign,and you are so young to have als...but no one answered me,is that the way that als progresses? is it usual for als to progress to almost all of the body without cleanical weakness?
i will be thankful to who answers my questions
 
No. In my experience and that of my other family members ALS started with weakness. In my case weakness was followed by twitching in the same area. It occurs to me that you are from an area that has seen much turbulence. Any toxic exposures in your past that could affect your nervous system? My other thought is these concerns are very common in medical students and are generally benign
 
thanks,and do you know anyone whit symptoms like me? i think i don't have UMN signs and just LMN,can it be CIPD or MMN?
 
just LMN,can it be CIPD or MMN?

That's a question for a doctor.



The symptoms you described did not sound like ALS to me.
 
one of my problems is that the doctor do not pay attention to me,i'm very young,i play tennis professionaly and almost every doctors know me in our city,as a healthy athlete who is in iran's professional tennis league not a boy with this kinds of major neurological problems,i don't have weakness in a way that the doctor see,they just see the fasciculations and a sure atrophy but they think the atrophy should be shown on emg,but the emg is clean so they think it is a normal physiologic asymmetrialis or fat loss,they say...they can't see any major problems with me so they think it is nothing,but i know something is really wrong with me,i can't wait untill it becomes obvious to doctors or to the emg!
i can't study because of these problems,yes i play tennis hours and hours but with two exteremly tired legs, a very tight breathe and newly right hand tiredness!
 
they can't see any major problems with me so they think it is nothing,but i know something is really wrong with me,i can't wait untill it becomes obvious to doctors or to the emg!
i can't study because of these problems,yes i play tennis hours and hours
wow, you can't wait eh?

You need mental health assistance, honestly. You are not going to believe anyone telling you this is not ALS. I'm sorry to see the torment you are going through, but so many are literally dead 20 months into this disease! You are still playing professional sport and complaining no one will believe you have an incurable, terminal illness?

What always amazes me is when people go to such great lengths to attempt to PROVE they have this medical condition.

Those of us with the condition, instead, can't believe that their symptoms started and the result was a diagnosis of ALS.

Personally I find those 2 opposing statements to be one of the biggest bases for the different between mental health and neurological conditions ...
 
"Personally I find those 2 opposing statements to be one of the biggest bases for the different between mental health and neurological conditions ..."

Ditto
 
>Personally I find those 2 opposing statements to be one of the biggest bases for the different between mental health and neurological conditions ..


ditto that!
 
Tillie,Ditto and MaxEidswick my dera friends,you are absolutely right about it,but i can't serve like before,i can't run as before,and it is almost two weeks that i have not gone to the court,because of my breathing and my hand...I used to feel a wall in the way of my breathing and when i arrived to that wall i couldn't go deeper,it's several days that the wall is nearer and i feel it sooner,is this the way of respiratory problems present?
yesterday i ran 600meters on a tredmile,i couldn't go more because of my shortness of breath and my bad feeling legs
please just tell me that my signs feet als or no?
 
have your breathing evaluated by a doctor - you 'feel' things, only a doctor can measure these and diagnose the causes.

stress will cause many breathing disorders

still does not sound like ALS, why must we say this repeatedly? I am not answering any more of this thread, I've given my opinion to you.
 
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