No prickling sensation

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Clearwater AL

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Gee, I gonna come across like a DIHALS'er but I posted this at the end of the Poll discussion. I have it written down to ask my Neuro next appointment but I'm wondering if anyone else is familiar with this. Yep, just like a DIHALS'er. :)

Don’t think it’s related to PLS but it’s weird. Ok, I have never been able to sit on the commode very long before my feet would fall asleep and when I’d get up the prickling sensation would be nearly unbearable. Often sitting sideways in my office chair at my desk I’d put my feet up on a foot stool with my legs crossed and my left foot would go to sleep and the prickling sensation would be awesome. But… now when my feet fall asleep they are just numb for a short time. No prickling sensation anymore. ?

I know... buy a padded toilet seat and don't cross your legs at your desk. :)
 
Al, as I'm sure you're aware, the burning and tingling can be caused by lots of things. The more interesting question, and the one I think you're asking, is why has the burning and tingling ended and only short-term numbness remains. As a guess, I would say it's from a failure in the sensory nerves--they're no longer sending the pain signals. I know MNDs are MOTOR neuron diseases, but I recently had an autonomic nervous system test in which I failed all over the place. I then found that a number of doctors are now looking at ALS as a disease that is not limited to the motor nerves, but is a multisytem destroyer.

I know you're PLS not ALS, but I think once you enter the spectrum of MNDs, a lot changes... and MND is probably at the root of most of it.

"Sensory involvement is thought not to be a feature of amyotrophic lateral sclerosis (ALS). However, in the setting of a specialist motor neuron disease clinic, we have identified five patients with sporadic ALS and a sensory neuropathy for which an alternative cause could not be identified. In three individuals, sensory nerve biopsy was performed, demonstrating axonal loss without features of an alternative aetiology. These findings support the hypothesis that ALS is a multisystem neurodegenerative disorder that may occasionally include sensory neuropathy among its non‐motor features. "

from Amyotrophic lateral sclerosis with sensory neuropathy: part of a multisystem disorder?
 
Thank you so much for the reply. If anyone can corner "the rare" I can. I've had Tic Douloureux on the left side of my face, had the injection cure (hopefully). That is a procedure you'd remember for... ever! I also had another very rare nerve problem that required surgery. (Man's problem). Haven't forgot that one either! Thanks for the link, read it twice. Much appreciated. (I always wonder if it's "read" or "red"... red seems more fitting but not according to that hardliner Webster. :) )
 
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