AKmom
Senior member
- Joined
- Jun 2, 2010
- Messages
- 608
- Reason
- DX UMND/PLS
- Diagnosis
- 11/2009
- Country
- US
- State
- Alaska
- City
- Wasilla
After a pretty good run of plateau, I seem to have some excessive progression. I had gone to California back on the 10th of Jan. to take care of my ailing father, who passed away on the 17th. It was like I was on adrenaline the whole time. He was not wanting any doctors involved or hospitals or hospice. I had to talk him into letting me come and 'hang out' with him.
After he passed, there was an additional week and a half of taking care of his possessions before coming home. That was on Tuesday last week. I managed to barely get up the stairs a couple times then woke up on Thursday that same week, not being able to do the stairs at all.
My legs are shaking when I walk and at times I catch myself using furniture or walls. I have been using my pwc out of the house and am sitting most of the day in my recliner or bed. I am having a hard time getting my pants on and start breathing hard from exertion when walking or doing things that require use of my legs.
So I guess I am going to have to accept these latest developments. I am sure that I overdid taking care of dad and the stress of it all might have pushed me over the edge of the plateau. My spaticity has gotten out of control too. So I am going to up my meds again. I had cut back last summer when I knew we were loosing our medical insurance. As luck would have it, we pay less now then when we had insurance because of a discount card we have for perscriptions that we were not allowed to use with the insurance.
Good news is that my mother wants to gift to me a stairlift for our stairs and I will be able to continue to work part time in my office upstairs. I am looking at the Bruno line of either the Elan SRE 3000 or the Elite SRE-2010. I did happen to find a supplier in Anchorage, and they should come out for free to measure and give me a quote. Its going to be expensive though.
I was denied both SSA and SSI. They said I didn't have enough points for SSA and that because of my father in laws death and my husband owns half a house with his brother, we do not qualify. At this point I do not care. The government is nothing but a pain in the tuckass and God is going to have to continue to take care of my needs. I just do not need to add anymore stress.
Hopefully hubby will get a good paying job soon that has benefits.
Ok, so that is how it is. I know you all can understand where I am coming from. No one else understands as well as you all. Thanks for listening!
After he passed, there was an additional week and a half of taking care of his possessions before coming home. That was on Tuesday last week. I managed to barely get up the stairs a couple times then woke up on Thursday that same week, not being able to do the stairs at all.
My legs are shaking when I walk and at times I catch myself using furniture or walls. I have been using my pwc out of the house and am sitting most of the day in my recliner or bed. I am having a hard time getting my pants on and start breathing hard from exertion when walking or doing things that require use of my legs.
So I guess I am going to have to accept these latest developments. I am sure that I overdid taking care of dad and the stress of it all might have pushed me over the edge of the plateau. My spaticity has gotten out of control too. So I am going to up my meds again. I had cut back last summer when I knew we were loosing our medical insurance. As luck would have it, we pay less now then when we had insurance because of a discount card we have for perscriptions that we were not allowed to use with the insurance.
Good news is that my mother wants to gift to me a stairlift for our stairs and I will be able to continue to work part time in my office upstairs. I am looking at the Bruno line of either the Elan SRE 3000 or the Elite SRE-2010. I did happen to find a supplier in Anchorage, and they should come out for free to measure and give me a quote. Its going to be expensive though.
I was denied both SSA and SSI. They said I didn't have enough points for SSA and that because of my father in laws death and my husband owns half a house with his brother, we do not qualify. At this point I do not care. The government is nothing but a pain in the tuckass and God is going to have to continue to take care of my needs. I just do not need to add anymore stress.
Hopefully hubby will get a good paying job soon that has benefits.
Ok, so that is how it is. I know you all can understand where I am coming from. No one else understands as well as you all. Thanks for listening!