scaredsilly88
New member
- Joined
- Dec 25, 2011
- Messages
- 5
- Reason
- Learn about ALS
- Country
- US
- State
- IL
- City
- Chicago
Hi everyone-
I'm so sorry for the message but I don't know where to go to ask. I feel like I have read so much about bulbar ALS that my brain cannot possibly filter it all, some of which may be misinformation.
This is my story:
I'm 27 years old and I am terrified that I have bulbar ALS.
Beginning in September of '09 (making that 27 months ago and counting) I started feeling like I couldn't talk correctly. It just felt like I was having to force words to come out correctly...especially if the word had an 'S' sound. Now, I've always had a slight lisp but it felt like it was becoming exaggerated. When I typed in this symptom, bulbar ALS is what I found. I went to my primary care dr, and then to a neurologist followed by an EMG, followed by another neurologist, followed by a tongue EMG, and here I am 27 months later with the same problem. This speech problem hasn't progressed..but it's constant. From the time I wake up to the time I go to bed, I feel like I'm working to enunciate correctly. Swallowing isn't much of an issue. Occasionally I'll have difficulty swallowing something but I'm just worried about the speech.
I can say confidently that I do not slur my words, i just have the subjective feeling of speech difficulty (all day every day).
After 27 months, should I still be sitting here terrified that I have bulbar ALS? I have no weakness in my arms/legs and my tongue isn't atrophied.
My neurologist(s) think it's just anxiety but it doesn't feel like it is.
Someone help! :-(
I just need some information on this.
I'm so sorry for the message but I don't know where to go to ask. I feel like I have read so much about bulbar ALS that my brain cannot possibly filter it all, some of which may be misinformation.
This is my story:
I'm 27 years old and I am terrified that I have bulbar ALS.
Beginning in September of '09 (making that 27 months ago and counting) I started feeling like I couldn't talk correctly. It just felt like I was having to force words to come out correctly...especially if the word had an 'S' sound. Now, I've always had a slight lisp but it felt like it was becoming exaggerated. When I typed in this symptom, bulbar ALS is what I found. I went to my primary care dr, and then to a neurologist followed by an EMG, followed by another neurologist, followed by a tongue EMG, and here I am 27 months later with the same problem. This speech problem hasn't progressed..but it's constant. From the time I wake up to the time I go to bed, I feel like I'm working to enunciate correctly. Swallowing isn't much of an issue. Occasionally I'll have difficulty swallowing something but I'm just worried about the speech.
I can say confidently that I do not slur my words, i just have the subjective feeling of speech difficulty (all day every day).
After 27 months, should I still be sitting here terrified that I have bulbar ALS? I have no weakness in my arms/legs and my tongue isn't atrophied.
My neurologist(s) think it's just anxiety but it doesn't feel like it is.
Someone help! :-(
I just need some information on this.