Al
Moderator emeritus
- Joined
- May 25, 2004
- Messages
- 8,083
- Reason
- PALS
- Diagnosis
- 10/2003
- Country
- CA
- State
- On
- City
- NW of Toronto
Hi Al
How are you? I need your opinion on something and also wanted to brag a little bit about my soon to be grand c hild so I atta c hed a pi c ture.
I have a question for you or maybe something you might want to ask in your forum of other c lients. On c e again we are working on attaining the SEED grant from ALS Canada and the Support Servi c es Committee has identified a need to provide edu c ation to family Physi c ians. There are many c lients who have expressed a need for their own family do c tor’s to familiarize themselves with ALS. We re c ently c ondu c ted a survey of c ommunity health professionals and asked them what the role of family do c tor’s might be in managing and we got an array of answers and c omments. A few were, |the family do c tor should be doing home visits”. Family do c tors should be more involved in c oordinating c are and referring to spe c ialists’ i.e. respiratory assessment if a c lient has no a c c ess to an ALS c lini c . Many c lients who either don’t want to go to a c lini c or are unable to get there never re c eive any kind of respiratory assessment or treatment. Family do c tor’s should be “kept up to date by other servi c e providers i.e. the c ommunity c ase manager or the c lini c to help the flow of servi c es and fa c ilitate de c ision making su c h as G-tubes and respiratory fun c tion’. “Could a family do c tor help a c lient a c c ess spee c h language servi c es. In Sudbury c lients wait months if not years for SLP servi c es and some are no willing to go to Toronto for servi c es and assessments.
These statements I have quoted from our survey Al. Can you c omment on what your thoughts around what the family do c tor’s role should be and what you feel is the type of edu c ation we should be providing for them. I am c onsulting with Dr Joy Wee and Dr Melanson from Kingston and they would like a c lient’s perspe c tive on where the gaps on in c are from a family physi c ian. Maybe you c ould put this to your forum for dis c ussion. What do you think?
Thanks AL
Anyone have any opinions you'd like to share? Even though this comes from ALS Ontario I'm sure anyone''s input would be good.
AL.
PS. For some rason, Suzanne's computer chops words on her.
How are you? I need your opinion on something and also wanted to brag a little bit about my soon to be grand c hild so I atta c hed a pi c ture.
I have a question for you or maybe something you might want to ask in your forum of other c lients. On c e again we are working on attaining the SEED grant from ALS Canada and the Support Servi c es Committee has identified a need to provide edu c ation to family Physi c ians. There are many c lients who have expressed a need for their own family do c tor’s to familiarize themselves with ALS. We re c ently c ondu c ted a survey of c ommunity health professionals and asked them what the role of family do c tor’s might be in managing and we got an array of answers and c omments. A few were, |the family do c tor should be doing home visits”. Family do c tors should be more involved in c oordinating c are and referring to spe c ialists’ i.e. respiratory assessment if a c lient has no a c c ess to an ALS c lini c . Many c lients who either don’t want to go to a c lini c or are unable to get there never re c eive any kind of respiratory assessment or treatment. Family do c tor’s should be “kept up to date by other servi c e providers i.e. the c ommunity c ase manager or the c lini c to help the flow of servi c es and fa c ilitate de c ision making su c h as G-tubes and respiratory fun c tion’. “Could a family do c tor help a c lient a c c ess spee c h language servi c es. In Sudbury c lients wait months if not years for SLP servi c es and some are no willing to go to Toronto for servi c es and assessments.
These statements I have quoted from our survey Al. Can you c omment on what your thoughts around what the family do c tor’s role should be and what you feel is the type of edu c ation we should be providing for them. I am c onsulting with Dr Joy Wee and Dr Melanson from Kingston and they would like a c lient’s perspe c tive on where the gaps on in c are from a family physi c ian. Maybe you c ould put this to your forum for dis c ussion. What do you think?
Thanks AL
Anyone have any opinions you'd like to share? Even though this comes from ALS Ontario I'm sure anyone''s input would be good.
AL.
PS. For some rason, Suzanne's computer chops words on her.