englishdave
New member
- Joined
- Dec 25, 2011
- Messages
- 8
- Reason
- Learn about ALS
- Country
- uk
- State
- england
- City
- leicester
Firstly can i say i have read all of the stickies that the site have advocated.
I fully understand if i dont get an answer, especially as im posing this at 2pm on christmas day.
I have written, perhaps quite selfishly, quite a long post. My genuine gratitude goes to anyone who spares the time to read, let alone reply.
I am a 41 year old, previously extremely fit / healthy male from the UK.
At the beginning of August this year, i became ill with flu like symptoms, tiredness, general malaise, low grade fever etc. I also had recurring perfectly round mouth cankers. I couldn't shake this off and visited my GP who took loads of blood tests. Shortly after i began getting really intense pains in my lower right rib area. It felt like my liver was twice the size it should be. What really stood out to me though was a tremor in both of my index fingers. The tremor was an evoked response, caused by use of a mouse or similar everyday function.
My liver was scanned along with spleen and kidneys. All normal. My bloods all came back fine, with the exception of raised Epstein Barr titres. My GP told me this was probably a flair of an old infection. Although i got the impression he didn't really know what was going on.
September came and went, as did the illness, some days didn't feel too bad, but most times i felt at best "wrong". October was the same, no improvements / changes.
in November i started to take olive leaf extract, L Lysine and milk thistle in an attempt to support my failing body. I revisited my GP, who did more blood, all still fine.
In mid November i began to feel incredibly dizzy / lightheaded and noticed a ringing in my ears (tinnitus) along with some minor cognitive issues like seeing letters the wrong way round.I was also getting really odd and and random muscle twitches / spasms in various parts of my body. I also had a really spaced out, wooly head feeling, really difficult to describe.
I ended up in the emergency dept. Of my local hospital on three consecutive evenings. I was assessed by three different Drs, more blood and head CT scan. All normal.i then went on to see 2 further drs on a ward. They could find nothing. The next day i went to see a neurologist who gave me the most thourough work up ive ever known... He could find no abnormalities.
Since then i have had more really odd symptons / sensations. Ive had some strange feelings on my tongue, almost like numbness, or if there are hairs on the tongue or throat. the twitching / spasms come and go absolutely everywhere. Ive had some crampy feelings in various parts of my legs and feet and a feeling that my ligaments are shortening. i sometimes get a feeling that something is crawling on my skin. I also sometimes get a feeling that someone has flicked water at me. The tinitus has been a permanent fixture. The most bazaar thing though is above my left eyebrow... When i raise it, it feels odd and then feels like momentarily it doesnt drop down when i stop raising... Like i said, bazaar.
I have been back to my GP. He has listened, examined and says he can find nothing wrong. I have seen SEVEN doctors and a neurologist Doctor since November.
More recently, in the last three to four weeks, my arms have felt different, sometimes heavy, weak or cramped. If i make a fist and use power my entire arm tremors.
The twitches \ spasms have latterly grown much worse. They appear all over the body, in particular my arms.
My doctor here in England is a fab chap, but is insistant that i am suffering from anxiety. Its like he cant see past that to see anything else.
yes i am anxious, but i would doubt anybody who has felt ill for a long time wouldnt be.
I have arrived on this site by internet recommendation.
I am awaiting results of an mri ordered by a neurologist back in november... I could tell he ordered this in an attempt to plicate me.
Thank you for your patience in reading this. Any advice or thoughts are most welcome.
Happy christmas.
I fully understand if i dont get an answer, especially as im posing this at 2pm on christmas day.
I have written, perhaps quite selfishly, quite a long post. My genuine gratitude goes to anyone who spares the time to read, let alone reply.
I am a 41 year old, previously extremely fit / healthy male from the UK.
At the beginning of August this year, i became ill with flu like symptoms, tiredness, general malaise, low grade fever etc. I also had recurring perfectly round mouth cankers. I couldn't shake this off and visited my GP who took loads of blood tests. Shortly after i began getting really intense pains in my lower right rib area. It felt like my liver was twice the size it should be. What really stood out to me though was a tremor in both of my index fingers. The tremor was an evoked response, caused by use of a mouse or similar everyday function.
My liver was scanned along with spleen and kidneys. All normal. My bloods all came back fine, with the exception of raised Epstein Barr titres. My GP told me this was probably a flair of an old infection. Although i got the impression he didn't really know what was going on.
September came and went, as did the illness, some days didn't feel too bad, but most times i felt at best "wrong". October was the same, no improvements / changes.
in November i started to take olive leaf extract, L Lysine and milk thistle in an attempt to support my failing body. I revisited my GP, who did more blood, all still fine.
In mid November i began to feel incredibly dizzy / lightheaded and noticed a ringing in my ears (tinnitus) along with some minor cognitive issues like seeing letters the wrong way round.I was also getting really odd and and random muscle twitches / spasms in various parts of my body. I also had a really spaced out, wooly head feeling, really difficult to describe.
I ended up in the emergency dept. Of my local hospital on three consecutive evenings. I was assessed by three different Drs, more blood and head CT scan. All normal.i then went on to see 2 further drs on a ward. They could find nothing. The next day i went to see a neurologist who gave me the most thourough work up ive ever known... He could find no abnormalities.
Since then i have had more really odd symptons / sensations. Ive had some strange feelings on my tongue, almost like numbness, or if there are hairs on the tongue or throat. the twitching / spasms come and go absolutely everywhere. Ive had some crampy feelings in various parts of my legs and feet and a feeling that my ligaments are shortening. i sometimes get a feeling that something is crawling on my skin. I also sometimes get a feeling that someone has flicked water at me. The tinitus has been a permanent fixture. The most bazaar thing though is above my left eyebrow... When i raise it, it feels odd and then feels like momentarily it doesnt drop down when i stop raising... Like i said, bazaar.
I have been back to my GP. He has listened, examined and says he can find nothing wrong. I have seen SEVEN doctors and a neurologist Doctor since November.
More recently, in the last three to four weeks, my arms have felt different, sometimes heavy, weak or cramped. If i make a fist and use power my entire arm tremors.
The twitches \ spasms have latterly grown much worse. They appear all over the body, in particular my arms.
My doctor here in England is a fab chap, but is insistant that i am suffering from anxiety. Its like he cant see past that to see anything else.
yes i am anxious, but i would doubt anybody who has felt ill for a long time wouldnt be.
I have arrived on this site by internet recommendation.
I am awaiting results of an mri ordered by a neurologist back in november... I could tell he ordered this in an attempt to plicate me.
Thank you for your patience in reading this. Any advice or thoughts are most welcome.
Happy christmas.