Have not posted for awhile. My husband has still not been diagnosed. The doctor at the ALS clinic has put him on rilutek and he has had one round of IVIG. She wants to cover all the bases. On his last EMG he had both chronic changes and some acute. She has labeled his condition possible post polio syndrome, but thought his muscle weakness was too progressive, multifocal neuropathy, or ALS. He has gone through multiple EMG's, a spinal tap, countless bloodwork including Athena to rule out Kennedy's disease. He is scheduled for another EMG mid April. He is extremely depressed. What makes it harder for him is that my sister's husband is in his 4th year of ALS, so he knows what could be down the road for himself. He has lost so much muscle in his shoulders, chest and arms. He can only walk a very short distance, and uses a cane. Fasciculations are in every part of his body. He was on disability for four months, but returned to work with a different position. Until someone tells me otherwise, I am remaining optimistic, where he has already given up all hope. He sits in the chair and stares up at the ceiling for most of the time he is home. He is on 75 mg. of elavil. I don't know what to do or where to turn.