Ed212
New member
- Joined
- Jan 24, 2016
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- Ca
- City
- Los Angeles
Hey, my maternal grandmother passed from als. Over the last year and a half I've had progressively worse neurological symptoms that they haven't been able to diagnose. It started with sudden attack of vertigo and convergence insufficiency on the subway. The dizziness and double vision have slowly improved but are not gone. This proceeded to months of profound fatigue where I was diagnosed with CFS. Suddenly, my fatigue decreased greatly but then I began to get fasiculations all over my body. Ive always had tendonitis in my forearms but that grew far worse until now it's getting hard to type or do dishes etc. Not impossible, not dropping things but very achy and weak. At some point my hands just sort of stop having any strength and I have to stop. My hands are extremely atrophied and bony. My legs also feel quite weak at times and at others seem OK. Through all of it, I've had memory and word finding problems. A few times I couldn't remember the name of the person I was talking to and once or twice where I was. The muscular deterioration is bi-lateral. I've been tested for lyme twice with the western blot and both times was 100% negative. At the present time they are treating me for lyme anyway but it's not doing a whole lot. I've also tested positive for an active mycoplasma infection. I would just say it was Lyme but even my Lyme doc looked at my hands and said "that could be als." I know if it's als it would be very atypical but with the family history I'm starting to get worried. Thoughts…? Is it time to visit an als clinic?